NICE seeking committee members for Me/CFS guideline

Suffolkres

Suffolkres

Senior Member (Voting Rights)
Received today....
Dear all,
NICE are recruiting committee members to join the Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome guideline.

We are looking to recruit to the following positions:
· GP
· Physicians with an interest in chronic fatigue syndrome
· Community paediatrician
· Community paediatric nurse
· Specialist nurse
· Dietician
All the information regarding these roles including instructions on how to apply can be found at the following link:
https://www.nice.org.uk/get-involve...-encephalopathy--and-chronic-fatigue-syndrome
The closing date for applications is Wednesday 26 September at 5pm.
Any queries please let me know.
Many thanks,
Amy
Amy Kelsey | Senior Project Manager
National Guideline Centre | Care Quality Improvement Department | Royal College of Physicians
11 St Andrews Place | Regent’s Park | London NW1 4LE
Mobile +44 (0)7557199906
www.ncgc.ac.uk | www.rcplondon.ac.uk | facebook | twitter | linkedin
NGC is a governance partnership between the Royal Colleges of General Practitioners, Nursing, Physicians and Surgeons.
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Thank you for your co-operation.
 
I thought that they'd already had their application period for professionals too?

If they've re-opened applications, that probably shows we did a poor job with encouraging good professionals to apply. Getting good people onto the committee would probably be a lot easier than trying to change the guidelines written by a bad committee.

Does anyone know anyone that would be good for these posts?:

· GP
· Physicians with an interest in chronic fatigue syndrome
· Community paediatrician
· Community paediatric nurse
· Specialist nurse
· Dietician
 
Yes, I am pretty sure the original application period was the same as for lay members. It looks a bit as if they have had no takers.

Luis Nacul would be a good person to be involved.
Or indeed Caroline Kingdon, the research nurse specliaist at LSHTM
 
ScottTriGuy said:
I hope there is a big push back for not including patients.

I'd go as far as saying that without patient reps on the committee, any guidelines they develop are automatically illegitimate.
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The patients have already been interviewed and decisions will be made by the end of next week. Apparently they had a very high volume of applicants, which is very positive.

They asked applicants if there was any reason their appointment might be considered controversial. I suspect they're screening professionals in the same way, and so need people who may not already have a reputation in the area.
 
wdb said:
Dietician is a bit surprising to see listed, is there sound science specifically linking diet to ME beyond the link to general well-being ?
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It was in the draft scope, so not too surprising. I think with IBS issues frequently co-morbid (or part of ME), we specifically need someone who can deal with those. Whether it should be a dietitian or something else is another matter, however.
 
wdb said:
Dietician is a bit surprising to see listed, is there sound science specifically linking diet to ME beyond the link to general well-being ?
Click to expand...

I asked the same question at the Scoping mtg.
Some people mentioned re microbiome research etc, but I doubt that a regular dietitian would have much clue on that. (I used to be one).
I understand that the 25% group have been trying to ensure that NICE have someone on board who knows re tube-feeding, this could be a specialist: dietitian or nurse or a gastroenterologist.
 
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