Kalliope
Senior Member (Voting Rights)
The newspaper Morgenbladet has a paywalled article today about a recent ME seminar in Oslo.
The title is: Seminar for ME researchers required security and police on standby: - They are trying to get us
The article begins with psychology professor and the organiser for the seminar Silje Endresen Reme who warns journalists against writing about ME.
- When we as much as hint that psychological factors can be part of the illness, we are not just met with disagreement, but with personal attacks. They are trying to get us.
The seminar was for ME researchers who research CFS as a biopsychosocial illness. They chose not to have any announcements on social media on beforehand and only let leaders on the top of the involved organisations know about the seminar. Otherwise there would be a lot of pressure from the activists, who according to Reme are in a minority of ME patients.
Trude Schei from the Norwegian ME Association comments and says it's sad if anyone felt they needed security. Nobody wants a situation like that. She is also sad that this perspective is repeated when it comes to ME, and says it overshadows the professional debate. If anything it's strange ME patients aren't even more angry.
- When they are insinuating that a whole patient group is aggressive, they have to show documentation for this having happened on the level it's claimed to have happened.
The article says the biopsychosocial side wants to investigate treatments as CBT, while the biomedical side thinks the illness should be investigated as a "physiological" illness. It says USA and UK stopped recommending CBT and GET, but that the countries have not chosen any sides.
Psychologist and ME sufferer Frøydis Lillesalen says the main reason for the frustration, beside the illness itself, is the lack of research and lack of help.
- ME patients have tried psychological treatments for 40 years. If these interventions had worked, we'd be left with very few ME patients in Norway.
Henrik Vogt, MD and leader of Recovery Norge says that Recovery Norge would never have had a function, had those who recover been welcome or listened to by the Norwegian ME Association.
Frøydis Lilledalen is sceptical that an organisation with 2-300 recovered people, is used to represent a patient group of 20 000 people.
https://www.morgenbladet.no/aktuelt...hold-og-politiberedskap-de-forsoker-a-ta-oss/
The title is: Seminar for ME researchers required security and police on standby: - They are trying to get us
The article begins with psychology professor and the organiser for the seminar Silje Endresen Reme who warns journalists against writing about ME.
- When we as much as hint that psychological factors can be part of the illness, we are not just met with disagreement, but with personal attacks. They are trying to get us.
The seminar was for ME researchers who research CFS as a biopsychosocial illness. They chose not to have any announcements on social media on beforehand and only let leaders on the top of the involved organisations know about the seminar. Otherwise there would be a lot of pressure from the activists, who according to Reme are in a minority of ME patients.
Trude Schei from the Norwegian ME Association comments and says it's sad if anyone felt they needed security. Nobody wants a situation like that. She is also sad that this perspective is repeated when it comes to ME, and says it overshadows the professional debate. If anything it's strange ME patients aren't even more angry.
- When they are insinuating that a whole patient group is aggressive, they have to show documentation for this having happened on the level it's claimed to have happened.
The article says the biopsychosocial side wants to investigate treatments as CBT, while the biomedical side thinks the illness should be investigated as a "physiological" illness. It says USA and UK stopped recommending CBT and GET, but that the countries have not chosen any sides.
Psychologist and ME sufferer Frøydis Lillesalen says the main reason for the frustration, beside the illness itself, is the lack of research and lack of help.
- ME patients have tried psychological treatments for 40 years. If these interventions had worked, we'd be left with very few ME patients in Norway.
Henrik Vogt, MD and leader of Recovery Norge says that Recovery Norge would never have had a function, had those who recover been welcome or listened to by the Norwegian ME Association.
Frøydis Lilledalen is sceptical that an organisation with 2-300 recovered people, is used to represent a patient group of 20 000 people.
https://www.morgenbladet.no/aktuelt...hold-og-politiberedskap-de-forsoker-a-ta-oss/