Norwegian Fluge & Mella daratumumab Haukeland trial 'ResetME' now accepting international donations

[OrganicChilli]

From their Facebook page: https://m.facebook.com/61579371603061/

The ME Fund had a hope and a goal of reaching 4 million kroner in the account before the end of the year. Now we are missing 250,000 kroner before we reach the goal. We have adjusted the goal on our own crowdfunding page (which works much like Spleis), where you can follow the status continuously.

(Donations made directly to account and VIPPS do not appear here) The amount collected as of 31.10 is 3,758,000

NOK 250,000 is only £18.8k/USD 24.5k.

I lost track of the total amount. Back in September they were NOK 5.5m short? So now it's just NOK 1.75m and then the trial is fully funded or am I missing something?

 

[josepdelafuente]

Yea, it looks like that's correct @OrganicChilli

From their crowdfunding page (linked to on their Facebook page that you linked to),
it looks like they were 250,000 NOK away from the total, and of that 250,000 they have now raised 32,046 NOK.

which would mean they are around 218,000 NOK from the total, which is around £16,377

 

[Utsikt]

There is a live tracker at the bottom of this page:

Innsamling til ME-fondet

ME-foreningen samler inn midler til biomedisinsk ME-forskning. Midler deles ut hvert år på de internasjonale ME-dagen, 12. mai.

www.me-foreningen.no

It has been a >3M NOK for a while, but I’ve not been sure how much of that (if any) has already been included in the ResetME budget so I have not mentioned it before.

In general, the communication has been quite muddled.

 

[ChronicallyOverIt]

Usually my folks and extended family donate to OMF at end of year for triple November which helps with 501(c) incentives

This year they are focusing on Norway

 

[Joan Crawford]

Cycle all done. Yay. Off home to warm up. It was a touch baltic. Ha ha. More than £3k raised. Yay. Thanks for helping me publicise. X

Many thanks to everyone for publicising and donating to my sponsored cycle.

I raised £3661 from 122 fabulous doners. It's on it's way to Norway.

 

[Trish]

Well done, @Joan Crawford.

 

[Chandelier]

I raised £3661 from 122 fabulous doners. It's on it's way to Norway.

Woohoo, wonderful, thank you so much!

 

[josepdelafuente]

Many thanks to everyone for publicising and donating to my sponsored cycle.

I raised £3661 from 122 fabulous doners. It's on it's way to Norway.

That's amazing Joan! That's about 49,000 Norwegian Krone, which is a big chunk of the remaining amount they need to raise (about 170,000 Krone), according to this page - https://innsamling360.no/innsamling/vis/195?&returnUrl=/Innsamling/

 

[Ash]

Bravo!
Thank you @Joan Crawford

 

[Utsikt]

That's amazing Joan! That's about 49,000 Norwegian Krone, which is a big chunk of the remaining amount they need to raise (about 170,000 Krone), according to this page - https://innsamling360.no/innsamling/vis/195?&returnUrl=/Innsamling/

That is just one of multiple ongoing fundraisers, so the goal doesn’t necessarily match the trial’s current funding status.

But it’s correct that in general we’re getting quite close and every contribution helps!

 

[josepdelafuente]

That is just one of multiple ongoing fundraisers, so the goal doesn’t necessarily match the trial’s current funding status.

But it’s correct that in general we’re getting quite close and every contribution helps!

Aha! Thanks for clarifying. You are a native Norwegian speaker right? I don't speak even a tiny bit!

 

[Utsikt]

Aha! Thanks for clarifying. You are a native Norwegian speaker right? I don't speak even a tiny bit!

Yes I am, but it doesn’t help much wrt the funding situations because the association doesn’t give very clear info about it. But I’m confident it will be funded within a reasonable timeframe, they are good at raising money from patients.

 

[josepdelafuente]

Is anyone able to work out where they're at now with fundraising?
It's so confusing trying to work it out.

 

[Flodeplay]

Is anyone able to work out where they're at now with fundraising?
It's so confusing trying to work it out.

I thought they needed 4.000.000 NOK for funding?

And they state on their website below (https://www.me-foreningen.no/om-oss/stott-me-foreningen/me-fondet/) they now have 3.812.663 NOK and that their numbers get updated every wednesday.

 

[Kitty]

Excellent news! That's only around £13,975 / €15,877 / $18,330. Might be up to target in another couple of weeks.

 

[forestglip]

It's confusing because isn't the full amount needed something like 26,000,000 NOK? Does raising this 4,000,000 complete the full amount?

 

[Utsikt]

It's confusing because isn't the full amount needed something like 26,000,000 NOK? Does raising this 4,000,000 complete the full amount?

The full amount needed is 26M NOK.

I’m still confused about how much is still needed, but I think it’s less than 5M NOK at the moment. Don’t quote me on that, though.

There are a few fundraisers active + the fund, so I’m not sure the study team even knows exactly how much they’ve got.

I hope it doesn’t matter and that they have enough already to do things as quickly as possible and still be confident they’ll have enough to finish it.