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(Not a recommendation) Alastair Miller on CFS

Discussion in 'UK clinics and doctors' started by Tom Kindlon, Dec 28, 2017.

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  1. lansbergen

    lansbergen Senior Member (Voting Rights)

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    I do not see Fluks own forum in the To: line.
     
    lansbergen, Dec 28, 2017
    #21
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  2. Andy

    Andy Committee Member

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    Andy, Dec 28, 2017
    #22
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  3. Trish

    Trish Moderator Staff Member

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    Being relatively new to ME websites and forums, I have no idea what Co-Cure is. Can anyone enlighten me. Google has let me down on this!
     
    Trish, Dec 28, 2017
    #23
    MEMarge, Melanie, Barry and 5 others like this.
  4. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Indigophoton, Dec 28, 2017
    #24
    Tom Kindlon, Melanie, Barry and 5 others like this.
  5. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Seeing the word column makes me wonder if this was written for some magazine or journal or something ...
     
    Invisible Woman, Dec 28, 2017
    #25
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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    Esther12, Dec 28, 2017
    #26
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  7. Barry

    Barry Senior Member (Voting Rights)

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    Seeing as he implies this rationale maps onto cancer sufferers etc, then the psychological issues he refers to must inevitably be secondary. But Dr. Miller doesn't seem to realise that PwME get really p1ssed off being told their condition is perpetuated by primary psychological issues (false-illness beliefs, and unwarranted fear of exercise), and he fails to appreciate that that is the real issue.
     
    Barry, Dec 28, 2017
    #27
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  8. Barry

    Barry Senior Member (Voting Rights)

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    If I have a nice roast dinner in front to me, and by some disastrous calamity there is no gravy to pour over it, nor any immediate prospect of any, that does not mean I'm going to pour bullshit over my dinner just because someone insists it is the 'best that we have'.
     
    Barry, Dec 28, 2017
    #28
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  9. Sean

    Sean Moderator Staff Member

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    You do claim it is primarily driven by psycho-social behavioural factors. It says exactly that in the PACE protocol, and endless other publications from you and your like-minded colleagues.

    In fact, you claim that is the essence of the disorder. To try to claim otherwise now is dishonest and cowardly. It is all on the public record going back decades, and is beyond legitimate dispute.

    Wot they sed.
     
    Sean, Dec 29, 2017
    #29
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  10. Alvin

    Alvin Senior Member (Voting Rights)

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    I wouldn't be so sure, they probably complain less because they got frustrated and gave up trying to get treatment. Suffering in silence may be a positive outcome to those who don't offer much else :emoji_face_palm:
     
    Alvin, Dec 29, 2017
    #30
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  11. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

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    Spot on. I don't give a crap what Miller and his fellow quacks 'believe'.

    They should have to scientifically prove that ME/CFS is psychological (or partly psychological dysfunction as he claims). Put up or shut up.
     
    Art Vandelay, Dec 29, 2017
    #31
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  12. Sean

    Sean Moderator Staff Member

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    Somebody should remind Prof Miller that clinician opinion is the lowest formal ranking of evidence in formulating clinical guidelines, and for very good reason.
     
    Sean, Dec 29, 2017
    #32
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  13. Forbin

    Forbin Senior Member (Voting Rights)

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    Call me an optimist, but I'd like to think that whoever wrote this letter had the good sense not to actually publish it just 3 days before Christmas.
     
    Last edited: Dec 29, 2017
    Forbin, Dec 29, 2017
    #33
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  14. Barry

    Barry Senior Member (Voting Rights)

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    Aforementioned letter, December 22, 2017:
    http://me-pedia.org/wiki/Alastair_Miller

    I think it is apparent that ME-Pedia now needs updating.
     
    Barry, Dec 29, 2017
    #34
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  15. Barry

    Barry Senior Member (Voting Rights)

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    Note "current NICE guidelines", making no mention they are scheduled for a complete overhaul.
     
    Last edited: Dec 29, 2017
    Barry, Dec 29, 2017
    #35
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  16. Andy

    Andy Committee Member

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    I don't disagree but what we have here is something that is claimed to be written by Miller, provided by a source that some have indicated to be not always reliable (Fluks) - it was one of the reasons I asked Tom if he had more information about the source.
     
    Andy, Dec 29, 2017
    #36
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  17. Barry

    Barry Senior Member (Voting Rights)

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    That is a very valid observation Andy, and well noted. It's true, we should not presume this letter is definitely from Dr. Miller, given the apparent unreliability of Fluks as a source.
     
    Barry, Dec 29, 2017
    #37
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  18. MeSci

    MeSci Senior Member (Voting Rights)

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    Could his use of the word 'current' be an acknowledgement that they are being reviewed?
     
    MeSci, Dec 29, 2017
    #38
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  19. Barry

    Barry Senior Member (Voting Rights)

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    Not sure. I suspect it is standard phrasing anyway, but in this case especially significant.
     
    Barry, Dec 29, 2017
    #39
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  20. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Some other pieces by Alastair Miller:

    https://www.gresham.ac.uk/lectures-...-fatigue-syndrome-not-just-tired-all-the-time


    http://www.sciencemediacentre.org/e...reatments-for-chronic-fatigue-syndromeme-2-2/

     

    Attached Files:

    Tom Kindlon, Dec 29, 2017
    #40
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