Nurses for ME

lunarainbows said:
@phil_in_bristol sorry to bother you but just read your post above, could you PM me too please? Or post details here? This is regarding the ME hospital passport, which Mark has posted about in another thread, but it may be difficult to get hold of him as he hasn’t posted for about 2 months since. It would be really good to get progress on the passport and if we could find out what representation for Severe and Very severe ME there is on making the passport, what’s in the passport and to post it here. There are quite a few members here on the forum who are really interested and for whom it’s really important. Since the NICE guidelines are coming out it would be good to see progress and see how it would work with that. Thanks.
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Hi - is that Mark Jeffers? I will PM you shortly, yes I agree this is really important , including the timing with the NICE guidelines change ..... cheers Phil
 
@phil_in_bristol I’m not actually able to start a conversation with you either.. when I click on your profile it’s not allowing me, and then when I try to start a conversation from my conversations inbox, and type your name in to start a new conversation, it doesn’t let me either!
 
News from N Ireland

"I thought you would be interested to hear that as a result of your e-mail to HF as below - I have been contacted by GD Senior Education Manager at the CEC re 'developing an agenda for a webinar on ME."

The catalyst was asking a nurse in charge of education to watch hospital admission video from Dialogues.
 
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Fizzlou said:
Did anything happen with Nurses For ME?
Generally a good article in nursing times including quotes by Caroline Kingdon.
https://www.nursingtimes.net/news/p...fRggmVpwZJsKS23hfr8XshvXtDcSRauGq3U5nf3OJY8Rw
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Yes there's a Nurses for ME group, with members, many are Nurses with ME, and a logo, etc. You can contact them through the CMRC patient advisory group; I was a member of this until 2 months ago. cmrc.pag@gmail.com

Shame that article in nursing Times calls it "ME/CSF so often...... <oops>
 
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