O-Glycosylation patterns in Post-viral Fatigue Syndrome: Sialic Acid-preserving Chemical Release, 2025, de Otazo Hernández

[DHagen]

The matter is particularly confusing when there are a huge number of papers that continue to be published that either purport to document neuroinflammation or that take it as a given (to say nothing of the patient community that has, quite understandably, largely accepted the idea) - it's just that most of the members of this forum, notably including dedicated researchers, are unconvinced by or disagree with these findings.

But that could change. See, for example, the initial reaction to this paper, shared today.

Some time ago, completely baffled by the contradictory information, I started this thread, which might help to understand some of the issue (then again, it might not...).

It's all really quite a mess.

 

[Jonathan Edwards]

It would be a pity if @Violeta really did disappear.

I can understand the confusion for someone new to these things. The problem is a bit more than the hang-over of atom for things that can be divided. There is not only a word hang-over but a concept hang-over. A considerable number of 'ME expert physicians', advocacy groups, charities, researchers and so on, including the ICC committee, who still think that the ME letters refer to what people had in bed in the Royal Free in 1955.

 

[forestglip]

Several posts, starting from the following post, were moved to the thread: An Introduction to Common Misunderstandings and Controversies for Newcomers

Some time ago, completely baffled by the contradictory information, I started this thread, which might help to understand some of the issue

Yeah, I almost wonder if we could have some kind of mini explainer for new people giving them a heads up on things like this. Not to enforce any view, but just so they aren't blindsided when they post something that'd be completely accepted everywhere else ("ME/CFS is neuroinflammatory" etc.) and get like 3 people asking them to clarify what they mean.