Jonathan Edwards
Senior Member (Voting Rights)
The problem for me is fitting any structural changes like basement membrane thickening with PEM . If there is a structural problem you are going to be weak to the same extent hour to hour, day to day. It does not tell us about the key issue of MECS, that you can be not too bad this morning and crashed out by supper time.
Also, if there are these changes why have they never been seen in hundreds of MECFS patients who have had muscle biopsy with EM analysis in the past?
Why have day 1 CPET results been pretty unremarkable?
Also, if there are these changes why have they never been seen in hundreds of MECFS patients who have had muscle biopsy with EM analysis in the past?
Why have day 1 CPET results been pretty unremarkable?