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Orthostatic intolerance

Discussion in 'Cardiovascular and Respiratory' started by Jonathan Edwards, Apr 6, 2019.

  1. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    9,049
    Location:
    UK West Midlands
    I have hypertension and i get Orthostatic intolerance as well. if we had regular reviews in the U.K. for people with ME i would have raised this before now. As things stand I’m hesitant to go to GP with it as I’m fairly sure i will get nowhere.
     
    Last edited: Oct 3, 2021
    Skycloud, alktipping, MEMarge and 9 others like this.
  2. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    2,643
    My OI is much worse in the morning. I start off everyday with hope to accomplish goals. But before I know it I feel more ill, weak, faint etc. I have to lay down. I hate pacing. I really like to accomplish things, and keep at it until they're done. But I'm forced to break tasks down into small bits. :wtf::(:banghead:
     
    Frankie, alktipping, Wonko and 9 others like this.
  3. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    2,643
    Interesting about caffeine. Although biomedical ME experts advise against caffeine. I wonder if the caffeine in tea and coffee have equivalent effects in nOH.

    So, what is nOH?

    I used to get post prandial exhaustion, to the point where it was like a mini-crash. I would feel weak, unable to walk, and my brain fog would increase. It didn't seem to matter what I ate. It frequently happened.

    Now that's a weird set of symptoms to try and explain to a doctor unfamiliar with ME.
     
    alktipping, Mij, Trish and 3 others like this.
  4. Mij

    Mij Senior Member (Voting Rights)

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    5,279
    Neurogenic Orthostatic Hypotension
     
    Amw66, alktipping, Yessica and 3 others like this.
  5. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    2,643
    @Mij

    Thank you.
     
    Mij, alktipping and Yessica like this.
  6. mango

    mango Senior Member (Voting Rights)

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    1,666
    Webinar with Peter Rowe, hosted by the Norwegian ME patient organisation last week.

    Orthostatic intolerance: POTS, hypotension and more.
     
    Kalliope, Yessica, ahimsa and 6 others like this.
  7. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    5,279
    The sweating/hot flashes segment on how it relates to OI was interesting.
     
    Yessica, Trish and Peter Trewhitt like this.

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