Oslo Chronic Fatigue Network

I defenetly agree!

 

It now appears that the BPS lobby, the Oslo consortium, and Elin Lindsäter have direct influence over ME care in the Stockholm region - and that the region chooses to label ME as fatigue.

Read more at my blog (Google translated):
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

The past few weeks following the Stockholm region's meeting regarding care for ME patients have been turbulent.

I have had significant difficulties obtaining documents related to the meeting. The region claims, for example, that no minutes were taken.
Link to blog:
https://mitteremitage-wordpress-com...l=auto&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

I have also tried to learn more about the collaboration with the health center where Lindsäter works. I have attempted to obtain a contract and decision regarding the additional assignment they claim to have. However, it turns out that there is no contract.
Link to blog:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

After being passed around the region for several weeks, I was suddenly contacted by the manager of the health center again. She informs me that they have declined the assignment.
Link to blog:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

So the BPS lobby preemptively claimed that they had gotten a formal assignment with regards to ME/CFS, but all they had was a proposal from themselves? And they ended up pulling out of it on their own?

I’m not up to speed on the roles, so I might have gotten things wrong?

 

About that. But I don't know what happened behind the scenes before the operations manager emailed and said that she was withdrawing the additional assignment. Whether it was voluntary or not. I have more questions now than when I started looking for information two weeks ago.

 

In related news...

Big news from Sweden: Fatigue diagnosis to be disappeared
https://www.s4me.info/threads/big-news-from-sweden-fatigue-diagnosis-to-be-disappeared.43190/

 

In my review of the applications to the funders of the Fatigue Study, it becomes very clear that it is not only based on the ideas of the BPS lobby and the Oslo Consortium, but that the study is also their collaborative platform.

Please see this thread for more information and links:
https://www.s4me.info/threads/chara...s-in-primary-care-ifas-lindsäter-et-al.42260/

 

Thank you so much @MittEremltage, fantastic effort, you're doing an amazing and really important job

 

I have tried to summarize what has happened in Sweden since the consortium's secret meeting took place in Oslo 2022.

Google translated blog post:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

Thank you for this clear account.

 

Thank you @Trish (and @Peter Trewhitt )! I feel the same way, that I shouldn't be shocked, but I still am. And above all, I am so frustrated that there is no public discussion about this beyond what I write and publish. The media acts as megaphones without any fact-checking. Consortium members are doing things in the name of Karolinska Institute, Stockholm University, and Region Stockholm, and people believe it.

I am doing what I can to document what is happening, thinking that at least there will be a record for when people wake up and try to understand what has happened."

 

A singular pseudoscientific focus can be dangerous.

 

Their entire ideology is built on this. But of course we know that any requirement they want to apply will only apply in their favor.

 

OPINION:

I have yet to read a single study from the Oslo Chronic Fatigue Consortium without finding something that seems off, writes board member of the Norwegian Covid Association Marit Stafseth (pictured).

(Foto: Jarle / Aasland Stavanger Aftenblad)

To the Oslo Chronic Fatigue Consortium:
Enough is enough
DEBATE: I question what the actual purpose of this research is.

Marit Stafseth BOARD MEMBER OF THE NORWEGIAN COVID ASSOCIATION
https://www.sciencenorway.no/covid1...c-fatigue-consortium-enough-is-enough/2503517

 

https://www.sciencenorway.no/covid1...is-neither-psychological-nor-physical/2503062

OPINION:

Responding to criticism: Modern brain research provides new insights into long-term symptoms and explains how symptoms can arise both with and without signals from the body, writes Silje Endresen Reme (pictured)

(Photo: Universtity of Oslo)
Long Covid is neither psychological nor physical
OPINION: We don’t believe there is one single way out of Long Covid – we believe there are several.
Silje Endresen Reme
PROFESSOR AT THE UNIVERSITY OF OSLO AND CHAIR OF THE BOARD, OSLO CHRONIC FATIGUE CONSORTIUM (OCFC)

 

Their explanations are so banale:

 

Reme also has this comment on LOTECA and SIPCOV:

With the finishing touch of:

 

Is that "as long as you agree with us"?

I genuinely do have questions, which we have discussed else thread, but how do I ask them without being branded vexatious?