Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

Barry · Nov 8, 2024

Trish said: ↑

You're right, @Barry.

We pointed all this out to Cochrane in our letter on harms sent on 17th March 2024.

And still we wait.
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Thanks @Trish, yes I'd forgotten that. Very, very good.

Trish · Nov 9, 2024 at 7:06 PM

Since it's a year since the Hilda briefly resumed reporting on the stalled new review process, I've marked the occasion by posting the following on Hilda's talk page:
https://hbprojecttalk.wordpress.com...hash=d0298d778c335f5253d6c02f70fd6677#respond

trishrhymes
November 10, 2024 at 6:02 am

Your comment is awaiting moderation.

Hello Hilda,

Given that I already have 3 post awaiting your moderation decision, and nothing has been posted here for 3 months, I have no idea whether this page is still functioning.

However, …

Exactly a year ago you posted your first update for over 2 years on the Cochrane website:

https://community.cochrane.org/orga…older-engagement-high-profile-reviews-pilot-3

Among other things, you said:

As completing the review will take time, the joint Cochrane/IAG meeting discussed a proposal from a member of the IAG for adding a revised editorial note. Some uses of the Cochrane review do not reflect critical nuance and limitations in its conclusions, and the goal of a note would be to try to reduce such misinterpretation. There was unanimous agreement to this step, and the IAG has begun drafting a proposal for the editors’ consideration.

Is this going to happen?

You also said:

The first draft of the protocol is currently with the Cochrane Editorial Unit, and the editors are planning the next steps for the project. Once they sign off on a protocol, the IAG will be reviewing it. Then it will go to peer reviewers, some of whom will be proposed by the IAG. Responses to peer review will also be considered by the IAG.

It will be the version after all that review that will be released as a preprint. We will use our experience with the first consultation to seek, analyse, and report on feedback to the protocol. The consultation period is currently planned to be six weeks after the preprint of the protocol is released. Providing written comments won’t be the only mechanism for discussing the protocol, and we’ll let you know about other opportunities.

Please can you tell us what stage that process has reached.

In your report on 20th December 2023
https://community.cochrane.org/orga…older-engagement-high-profile-reviews-pilot-4

you said:

The revised editorial structure to support this review has taken shape. I expect details will be finalised by my next report, including a preliminary timetable.

We also plan to get the IAG’s first consultation underway in the early weeks of the new year.

Please could you tell us why this hasn’t happened.

On complaints, you said there is a new structure for handling complaints, and added:

We agreed on pathways for referring complaints, along with continuing liaison. This should improve responsiveness in future.

I recognise the handling of complaints is not your direct responsibility, but you may be able to tell us more about what is happening with S4ME’s complaints. All we’ve heard from Cochrane is that they still haven’t finished considering our complaints. No idea of timescale, nor of which complaints they are considering.

Can you share any news on the S4ME complaints?

And finally…

When do you envisage the new review will be published?

Thank you,

Trish Davis
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NelliePledge · Nov 13, 2024 at 9:25 PM

The total is now 12329 an increase in signatures over the last few days. Thanks for those who have shared or reshared the link. Just a reminder that due to the way social media algorithms work your posts don’t always show up for followers or friends so regular or occasional reposting can help.

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Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

Barry Senior Member (Voting Rights)

Trish Moderator Staff Member

NelliePledge Moderator Staff Member

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Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

Barry Senior Member (Voting Rights)

Trish Moderator Staff Member

NelliePledge Moderator Staff Member

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