Petition: The NHS must take measures to STOP Dill deteriorating

[SNT Gatchaman]

Petition created on 4 July 2025

https://www.change.org/p/the-nhs-must-take-measures-to-stop-dill-deteriorating

We call on Leeds Teaching Hospital NHS Trust (LTHT) and Continuing Healthcare (CHC) to:

Immediately transfer Dill to a quieter ward outside of the “acute/general” setting while they await discharge
Discharge Dill home as soon as possible with their existing daytime care agency

In August 2024 Dill’s GP warned they were at imminent threat of dying, and they were transported to Leeds St James‘s Hospital (LTHT) under full sedation. Dill has been unable to leave the hospital since then, and their condition has deteriorated further as a result of the unsuitable hospital environment and multiple institutional failings.

 

[MrMagoo]

This is the second person in 2 days, why is this so difficult?

I believe we are up against a dangerous intersection of poor nursing and care meets meh ME isn’t real/this isn’t ME

 

[Kiristar]

A lack of understanding is a massive part of it for sure, that said my elderly frail mother has been in and out of hospitals 3 or 4 times this year and my impression where I live is that it's just an incredibly over busy, chaotic environment where things get missed all the time because there are simply not enough staff to Patients in their care and so they are constantly discharging people too early.

We've had all sorts of mess ups, pointless transfers, extra falls while she has a back fracture due to internal comms failings, pills forgotten and left off discharge papers, a near complete lack of family communication (other than to sign resuscitation disclaimer corporate tick boxes ) to name but a few.

It's definitely a broken system.

 

[BrightCandle]

There are zero tools for stopping the abuse of ME/CFS patients in the NHS. There is no oversight system that can swoop in and change how they are being cared for, the consultant in charge can completely ignore any experts that might be sent to help the patient, as we saw with Maeve's case they can follow that through until the patient dies from neglect. The two prevention of future death orders are not going to be the last such orders because this is routine, its how we are always treated.

 

[MrMagoo]

Surely they don’t want ppl in hospital for 6+ months though? Getting them better and moved on is in their interest isn’t it?
I’d have thought “long term ers” would be highlighted on reports, questions asked why they’re still there?

 

[V.R.T.]

Surely they don’t want ppl in hospital for 6+ months though? Getting them better and moved on is in their interest isn’t it?
I’d have thought “long term ers” would be highlighted on reports, questions asked why they’re still there?

This is one of the most bizarre things about the psychobehavioural ideology: it is so immensely incredibly wasteful in myriad ways and yet nobody in power ever wakes up to it!

As @rvallee has said elsewhere though, this situation could not exist without the deep prejudice and hatred doctors feel towards pwME. The fact that they can collectively look at people in these states and deny them their basic needs is terrifying, and if ME/CFS gets it's due medically as we're all hoping, it's going to be looked back on as a frightening example of how easy it is to dehumanise an outgroup.

A while back I talked about legal action against individuals, and was met with a negative response. Which may have been pragmatically speaking correct, unfortunately. But the institutions that have allowed this neglect and harm to happen on their watch need to be brought to account once we have a compelling story science wise. All of the deterioration, the cruelty and abuse, the deaths...none of it had to happen, or could have without deep malign prejudice at an institutional level.