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Plasma exchange

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Badpack, Sep 11, 2019.

  1. Badpack

    Badpack Established Member (Voting Rights)

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    Heyho,
    short introduction from my side, im from germany ( english is not my native language so please overlook possible grammar mistakes :) I got CFS after an infection with the legionnaires disease in 2014. I tried a lot of different therapies by now (some examples: Rituximab, Rapamun) and im now short before a plasma exchange treatment bc im still a big believer this disease is an autoimmune problem aka autoantibodies vs adrenergic/muscarinergic receptors and i hope i can at least see a short term relief in symptoms when they are gone for some time.

    My question, did anyone else here try it before ? Did it help you and if yes for how long?
    Thanks in advance :)
     
  2. beverlyhills

    beverlyhills Established Member (Voting Rights)

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    Yes, I have had double exchange plasmapheresis in Thailand. No, it did not help. Yes, it would not hurt.
     
  3. Badpack

    Badpack Established Member (Voting Rights)

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    Thanks a lot for the answer. Dont know what to expect but will definitely give it a try. I was tested positiv for ß2, M2 and nociceptin receptor autoantibodies. So lets see how life is without them for a while.
     
    ladycatlover and Kitty like this.
  4. butter.

    butter. Senior Member (Voting Rights)

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    hey!

    did you have plasma exchange yet?

    ty
     
  5. Badpack

    Badpack Established Member (Voting Rights)

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    I did have one cycle of 7 exchanges over 10 days. Not gonna lie it was pretty exhausting. Sadly it did absolutely nothing for me.
     
  6. butter.

    butter. Senior Member (Voting Rights)

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    hey, what dose of rapamune did you try? did it help at all? how severe are you?
     
  7. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    Last edited: Jun 2, 2020
  8. Badpack

    Badpack Established Member (Voting Rights)

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    @butter. 4mg loading dose followed by 2mg for about a month. Did nothing. Im bedridden most time of the day.
     
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