Plasma exchange

B

Badpack

Established Member (Voting Rights)
Heyho,
short introduction from my side, im from germany ( english is not my native language so please overlook possible grammar mistakes :) I got CFS after an infection with the legionnaires disease in 2014. I tried a lot of different therapies by now (some examples: Rituximab, Rapamun) and im now short before a plasma exchange treatment bc im still a big believer this disease is an autoimmune problem aka autoantibodies vs adrenergic/muscarinergic receptors and i hope i can at least see a short term relief in symptoms when they are gone for some time.

My question, did anyone else here try it before ? Did it help you and if yes for how long?
Thanks in advance :)
 
Thanks a lot for the answer. Dont know what to expect but will definitely give it a try. I was tested positiv for ß2, M2 and nociceptin receptor autoantibodies. So lets see how life is without them for a while.
 
Badpack said:
Heyho,
short introduction from my side, im from germany ( english is not my native language so please overlook possible grammar mistakes :) I got CFS after an infection with the legionnaires disease in 2014. I tried a lot of different therapies by now (some examples: Rituximab, Rapamun) and im now short before a plasma exchange treatment bc im still a big believer this disease is an autoimmune problem aka autoantibodies vs adrenergic/muscarinergic receptors and i hope i can at least see a short term relief in symptoms when they are gone for some time.

My question, did anyone else here try it before ? Did it help you and if yes for how long?
Thanks in advance :)
Click to expand...
hey, what dose of rapamune did you try? did it help at all? how severe are you?
 
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