Podcast: Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Opinionated Science

Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Mesothelioma
November 5, 2021

ME/CFS first 17 minutes.

https://technologynetworks.podbean....onic-fatigue-syndrome-mecfs-and-mesothelioma/

podcast notes:
Health Body Scraps Graded Exercise Therapy Recommendation for ME/CFS
What Is ME/CFS?
How the Pace Trial Misled ME/CFS Patients - via STAT
Medical Leaders Sign Joint Statement in Response to NICE Guidelines on ME/CFS

eta: warning very loud music for first few seconds

eta2:
it might be worth someone contacting the guy who did the podcast to let him know about S4ME
https://www.technologynetworks.com/tn/editor/ruairi-mackenzie

 

This was very good. My impression it that this is the first time the journalist is covering ME, and he's really done his homework!

ETA: Thank you for warning about the loud music in the start!

 

Overall he did a pretty good job. He does make a sprinkling of mistakes. But more accurate than vast majority of UK newspapers and journal articles out over recent weeks.

Since writing that I have forgotten what a couple of these were.

“off track for a decade”
when he has stated the formal dismissal and re-categorisation of this disease as Hysteria Mass or otherwise began in 70’s.
There is evidence of a steady programme to solidify a single treatment approach based on this conception from that day to now and on into the future.

This approach is one of denial of possibility of disease in favour of assumption of mental dysfunction on part of patient. This very same is that which is not delivering the goods in studies or in life.

He referrers to this non delivery without naming the source. “Off track” “wrong” “discredited” but who is, is pretty vital to this story.

He has clearly seen what these people are capable of so
I can’t judge too harshly.

However the history of ME doesn’t make sense if all the actors are edited out. I am not suggesting specific names are necessary.

To explain however briefly what has been said and done by various professional bodies collectively to bring us to a situation of no funding no treatment and importantly no care and plenty of poverty and social exclusion, is necessary.