What if you were officially diagnosed with M.E. ?
Speaks volumes as to what the DWP/Jobcentre Plus
really think about M.E.
so much for the recent 'training' from AfME
https://www.actionforme.org.uk/news/action-for-me-hosts-dwp-spotlight-training/
I'm still working my way through the DWP ESA/UC assessors manual, but my impression is that the only way for a person with M.E. (with no other health conditions or disabilities) to get into the Support Group of ESA (or the UC equivalent) is if the Health Care Professional (HCP) accepts that they are unable to reliably, safely and repeatedly mobilise more than 50 metres (including using aids or a manual wheelchair). The HCP would probably make this judgment if they agreed that claimant had 'severe M.E.'
I think the only chance a PWME would have of the DWP accepting that work (or work related activity) would lead to a 'substantial risk' to their health, would be if they could get their GP or a consultant to make a statement to that effect and submit this with their other medical evidence. The DWP dissuades the health care professional from using this recommendation except in very extreme circumstances, and even if they do, the DWP Decision Maker (DM) can still choose to ignore it. The DM can still ignore medical advice, but if they did and the claimant suffered as a result, the DWP could have a legal case to answer.
All of this means that many PWME who have what the DWP would consider 'moderate' M.E. are likely to fail the WCA, as obviously are those who are 'mild'. A person with moderate M.E.
might be able to make up the 15 points needed for the Work Related Activity Group (or UC equivalent)
if they get their 'rapid muscle fatiguability', PEM and cognitive problems accepted by the HCP, but then they would still find themselves subject to the ignorance of the Job Centre advisors and all that entails.
What is needed is for the DWP to be educated about the severe and cumulative effects of Post Exertional Malaise on a person with M.E., and that PEM is part of the condition across
all severity levels, including mild and moderate. I think we are a long way off that.