POTS - definition, diagnosis and symptoms

May I cross reference you all to this new thread please?

https://www.s4me.info/threads/cereb...n-or-tachycardia-van-campen-et-al-2020.13583/


This is exactly the sort of thing that I experienced, @Tom Kindlon
I have my diary notes from the day of the tilt.

 

Moved from the Long covid thread

"
History
In 1871, physician Jacob Mendes Da Costa described a condition that resembled the modern concept of POTS. He named it irritable heart syndrome.[22] Cardiologist Thomas Lewis expanded on the description, coining the term soldier's heart because it was often found among military personnel.[22] The condition came to be known as Da Costa syndrome,[22] which is now recognized as several distinct disorders, including POTS.[citation needed]

Postural tachycardia syndrome was coined in 1982 in a description of a patient who had postural tachycardia, but not orthostatic hypotension.[22] Ronald Schondorf and Phillip A. Low of the Mayo Clinic first used the name postural orthostatic tachycardia syndrome, POTS, in 1993.[22][114]"

wikipedia

thread on 'soldiers heart'
https://www.s4me.info/threads/soldier’s-heart-the-forgotten-circulatory-neurasthenia-–-a-systematic-review-borges-et-al-may-2020.15310/

eta: and of course the NHS know all about it!
PoTS https://www.nhs.uk/conditions/postural-tachycardia-syndrome/

 

Examples of diseases in which secondary dysautonomia can occur include:

• Diabetes.
• Parkinson’s disease.
• Muscular sclerosis.
• Rheumatoid arthritis.
• Lupus.
• Sjogren's syndrome.
• Sarcoidosis.
• Crohn’s disease, ulcerative colitis.
• Celiac disease.
• Charcot-Marie-Tooth disease.
• Chiari malformation.
• Amyloidosis.
• Guillain-Barre syndrome.
• Ehlers-Danlos syndrome.
• Lambert-Eaton syndrome.
• Vitamin B and E deficiencies
• Human immunodeficiency virus (HIV).
• Lyme disease.

Post infectious POTS and autonomic nervous system dysfunction is 'new' and 'alarming', but ME/CFS is still considered 'mysterious'.

 

Done.

 

And let's be honest here, POTS is clearly whatever physicians used to call "fainting women" back then, just as "neurasthenia" was early description of ME. Descriptions of this likely date back several centuries, it's just that no one was able to see enough patterns. But to call this new is basically on the level with calling electric power new. By the standards of our entire history, it's pretty new, but since it literally predates the professionalization of medicine, it's a very mediocre excuse.

 

https://twitter.com/user/status/1584643906741751808

 

I was surprised the article didn't mention either the tilt table test or the NASA lean test.

The NASA lean test is less sensitive than a tilt table test. It could miss a lot of cases of NMH - neurally mediated hypotension, delayed drop in blood pressure. But from what I've read the NASA lean test should catch most cases of POTS. I believe it's much better than the old lie down/sit/stand test so often done in the doctors office to test for the more common initial hypotension that starts right when you stand up.

 

(There may be a better thread for this)

 

Presentation now online from this week's: "Could a Common Condition Called POTS Explain My Chronic Fatigue Syndrome? (Tae Hwan Chung, MD, Director/Founder, Johns Hopkins POTS Clinic Program)

(~57 minutes)

https://www.youtube.com/watch?v=4Y0nF_8kboo