Professor Anthony Komaroff, articles and videos, 2018 onwards

Indigophoton

Indigophoton

Senior Member (Voting Rights)
Webinar Hot areas in ME/CFS research, 2018

  1. Thu, May 24, 2018 6:00 PM - 7:00 PM BST
presented by Anthony L. Komaroff, MD, Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital Join Anthony L. Komaroff, MD, as he provides the latest installment of “Hot Areas In ME/CFS Research: 2018”. With increased momentum in research over the past two years, this webinar is a timely update to his popular presentation from our 2016 series that addressed current understanding of the role of various systems – including the brain, energy metabolism, genes, and immune system – in the pathophysiology of ME/CFS.
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At the link you can get the time for your timezone.

https://register.gotowebinar.com/register/4424604504971632643
 
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Indigophoton said:
At the link you can get the time for your timezone.
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Hi, I got an error message as I believe this was for the live presentation. I don't think a copy is up on YouTube yet as I believe that is where they posted the one from last year.

The page you requested could not be found.
 
It's not too late to sign up for tomorrow's research webinar!

The Solve ME/CFS Initiative (SMCI) is pleased to announce the return of our popular webinar series for 2018 with “Hot Areas in ME/CFS Research: 2018” presented by Anthony L. Komaroff, MD, Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital.

With increased momentum in research over the past two years, this webinar is a timely update to his popular presentation from our 2016 series that addressed current understanding of the role of various systems – including the brain, energy metabolism, genes, and immune system – in the pathophysiology of ME/CFS.

Register for the Thursday, May 24 webinar here.
 
I've just registered to watch it. Anyone else?

edit - I should have said listen, not watch. No idea how these things work.
 
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Sasha said:
@Jonathan Edwards - I've set this YouTube video to start at the point where Dr Komaroff starts talking about the study I mentioned earlier.

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Thanks Sasha. I would not put too much weight on that. The study is from 20 years ago and apparently not confirmed by anyone else. The first measure is immune complexes. Measuring immune complexes was a bit like making magic potions - highly unpredictable and nobody quite knew what was actually being measured. Most immunologists by 1990 had given up taking notice of IC tests. The second measure seems to be IgG level. If PWME had statistically significantly different IgG levels lots of studies would have picked that up and it would be in the textbooks. It would be the first piece of background data for every lecture on ME. It isn't. When the Norwegians, and others, including ourselves, trawled through evidence for B cell changes nothing was found in terms of IgG. And that is looking for just a statistical difference.

I have to say I find it disappointing that Komaroff goes through a long list of uncorroborated data of very variable quality seeming to suggest that it all adds up to a great weight. Science does not work like that. What matters more is a single piece of really hard data and I don't think we have it yet.
 
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2019 Interview with prof. Komaroff by Dylan Murphy

#MEAction: Professor Anthony Komaroff

In your opinion, what needs to be done by public health authorities to bring about better health outcomes for people suffering from ME?

One of the greatest causes of suffering among people with ME/CFS is that some doctors, friends, family members, and employers wonder if the illness is imaginary, or fabricated. Public health authorities can help disseminate the scientific evidence that the illness has objective underlying biological abnormalities, involving the brain, autonomic nervous system, immune system and energy metabolism. They also can provide more support services for those who are homebound.
 
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This is a great article to have available on-line, particularly because of the association with the Harvard Medical School.

It may not be news to the many of us who have been affected by ME/CFS for years and decades, but I'm sure it would have been incredibly helpful to have had something like this to show to bewildered friends, family and doctors when we first became ill. I hope it helps those who, unfortunately, are still being being struck down with ME/CFS today.
 
I have mixed feelings. The article itself is quite concise, has a few details and some positivity that doesn't come off as cheesy. I like the final comment:

Instead of doctors saying, “The tests came back normal, there is nothing wrong,” they will say, “Tests showed us what was wrong, and we have treatments to fix it.”

And doctors will recognize the wisdom of the wise advice we all learned in medical school: “Listen to your patient. The patient is telling you the diagnosis.”
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The problem (apart from not mentioning my favourite exercise physiology findings) is the fact that there really have been very few original insights and still a lack of research capacity going forward. The amount of articles seems to go up by 1000 (we're now over 9000!) everytime someone quotes a similar figure. But 9000 is a drop in the bucket, given most of them are low-budget studies studying the same old things and getting the same old null or non-specific results) (oh and the old '$17 to $24 billion annually' is way out of date, given inflation)
 
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