RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

Trish · May 18, 2019

Prognosis for childhood CFS is excellent

Abstract
Aims Services for childhood Chronic Fatigue Syndrome (CFS) are variable across the UK. We evaluated the service and outcomes involving an Occupational Therapy (OT) service commissioned to support children with CFS in the South-West of England. We also evaluated the demographics of the service users, looking at aetiology, gender and age.

Methods Patients up to 16 years of age were identified from the CFS Therapist database with data collected from that database along side hospital electronic patient records. All patients who presented for treatment between April 2014 to March 2018 were assessed for suitability. The inclusion criteria used for selecting participants included patients aged 16 or under, diagnosed with CFS, who had attended the CFS service at least once during this period.

Results 116 patients are in the study over the 4 year period April 2014-March 2018. Annual Incidence of CFS is 0.4 per 1000 children with male:female ratio of 2:3 with 81% being above 10 years of age. 36.2% of the patients had no precipitating cause identified with 40.7% reporting a recent viral infection. 47.9% of the viral infections were identified as Epstein Barr Virus (EBV). Medication use such as Amitriptyline, Gabapentin and melatonin was noted in 29.4%. 65.5% of the patients were discharged from both the CFS service and the paediatric team with 9.5% of the children transitioned to the adult team, all of whom had a diagnosis at a mean age of 13 years.

Conclusion Incidence of CFS in Cornwall is higher compared to reported rates across the West (0.11). As has been shown in adult studies (female:male ratio of 6:1), female children have a higher risk of CFS although not to the same extent. The audit demonstrated no clear precipitating cause. There is association of viral infections with CFS. Unlike in adults, where less than 10% recover to pre-morbid levels, children with CFS have good prognosis with high remission when they are supported by a service that includes OT and paediatricians.
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For other conference abstracts see this thread: https://www.s4me.info/threads/me-cf...cs-and-child-health-conference-may-2019.9555/

Snow Leopard · May 18, 2019

"Excellent" must be a relative term, because 66% is still not terribly good.

Trish · May 18, 2019

It says 66% were discharged from the service, but doesn't stay that was as a result of recovery. I image some were simply discharged because they had finished whatever therapy was on offer, ie reached the end of the road with the service. I suspect a lot were misdiagnosed. It just says they were diagnosed with CFS, not what criteria are used.

Snow Leopard · May 18, 2019

Trish said: ↑

It says 66% were discharged from the service, but doesn't stay that was as a result of recovery. I image some were simply discharged because they had finished whatever therapy was on offer, ie reached the end of the road with the service. I suspect a lot were misdiagnosed. It just says they were diagnosed with CFS, not what criteria are used.
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Exactly...

Sid · May 18, 2019

The data do not justify the chirpy title, to say the least.

rvallee · May 18, 2019

Sid said: ↑

The data do not justify the chirpy title, to say the least.
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Not even close. Zero accountability.

Peter Trewhitt · May 18, 2019

There is also the issue that we are currently unable to distinguish between remission and recovery. The abstract seems to use the two words interchangeably.

NelliePledge · May 18, 2019

Do these people understand the English meaning of any words they use

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RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

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RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

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Trish Moderator Staff Member

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