RCPCH conference 2019 abstract: When chronic fatigue syndrome leads to mutism, Moeda et al

Thread on that study here, https://www.s4me.info/threads/resti...tudy-in-adolescents-with-cfs-2019-josev.9580/

 

Yes, but it showed the same in the normal controls as far as I can see.

 

Given the impact of this research can anyone bring it to the attention of biomedical/ exercise specialists for comment. Perhaps thus weeks conference is an opportunity.

This is really dangerous . Too many children have not recovered from similar rehabilitation.

 

Merged thread

WHEN CHRONIC FATIGUE SYNDROME LEADS TO MUTISM
1,2S Moeda*,1,3LGamper,1A Gregorowski,1TSegal.

1Children and Young People’sSpecialist Adolescent Services, University College Hospital, London, UK;
2Department ofPaediatrics, Hospital Beatriz Ângelo, Loures, Portugal;
3Department of Paediatrics, UniversityChildren’s Hospital, Zurich, Switzerland

10.1136/bmjpo-2019-RCPCH-SAHM.32

https://bmjpaedsopen.bmj.com/content/bmjpo/3/Suppl_1/A14.2.full.pdf

 

My first thought is how on earth did this poor child cope with the intervention imposed on him.

He was incredibly lucky to experience some spontaneous recovery despite the intervention. He presumably at some level indirectly rationed his totally activity, by stopping as much cognitive activity as possible to try to cope with the graded exercise therapy.

 

I recall a previous thread touching on what looks like the same child.
Is this a different paper?

This is 2nd one from UCH . Timing is everything.

 

they are so thick honestly. It's cumulative... the activity threshold for triggering PEM is CUMULATIVE. He did a lot more phsycially so could so a lot less cognitively, it could easily have been demonstrated in the opposite way. Many adolescents have spontaneous recovery or it could have been a self limiting PVFS in the first place. They will insist on this post hoc ergo propter hoc assumption as if it were completely valid & foolproof.

But if some patient says they took a spoon full of apple cider vinegar every morning (or some other random thing) & recovered, they are assumed to be bonkers.

ETA: just to clarify - I not suggesting apple cider vinegar works as a 'cure' or that anecdotal reports of this should be regarded as anything more than anecdote, just that these BPS researchers use one rule for themselves & another for everyone else, & I recently heard the apple cider vinegar anecdote - it struck me as being as reliable as the above study.
I am glad the young man is feeling better though - but note he still needs home tuition

 

Somehow this seems to have made it into the Swiss journal Paediatrica.

Google translate of the article:

https://www-paediatrieschweiz-ch.tr...sl=auto&_x_tr_tl=en&_x_tr_hl=de&_x_tr_pto=nui

About the journal:

https://www-paediatrieschweiz-ch.tr...sl=auto&_x_tr_tl=en&_x_tr_hl=de&_x_tr_pto=nui