Recording of online talk and Q&A: "Diagnosis and Management of Orthostatic Intolerance in ME/CFS" with Frans Visser MD PhD and Linda van Campen MD

The YouTube link below relates to the April 8 online talk and Q&A with Professor Frans Visser and Dr Linda van Campen who are both Dutch experts/cardiologists/clinicians/researchers.

https://www.youtube.com/watch?v=GdiRC5Fmuzg

This talk and Q&A session was arranged by the Irish ME Trust and the Irish ME/CFS Association.

Q&A was edited by Declan Carroll of the Irish ME Trust to anonymise it.

The file of the slides is available:
<https://www.dropbox.com/s/wg9eo40z46q7ain/Prod Visser Presentation PDF.pdf?dl=0>
&
<https://www.mediafire.com/file/6f580rpwvzrd4ms/Prod_Visser_Presentation_PDF.pdf/file>

 

A point I found interesting was they didn’t consider it POTS if someone’s heart rate went up after their blood pressure dropped: they considered that a normal reaction to blood pressure dropping (that isn’t saying the person had a normal response to being upright).

A lot of people have never had a tilt table test or something similar like a lean test where blood pressure was regularly measured so wouldn’t know if this is the scenario when their heart rate goes up.