Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

Also, this being the residency subreddit, we can tell that this bigotry is entirely taught. People don't bring such ugly ideas of their own for the most part, and yet those specific ideas seem to be universal. So that can only be taught.

The intensity of their contempt strongly suggests even worse things are taught in general, generic bigotry of a sort, making unacceptable ideas the only acceptable thinking.

I'm really leaning into the likelihood that even with a major breakthrough, we will not get any help from this profession. They will obstruct us the whole way and never relent. Even if we develop treatments on our own, we may have to work around healthcare systems that will simply refuse to approve, or even look at them.

We are truly on our own here. This nightmarish tradition has been going on for far too long, they can't accept the truth of what they've done and continue to do. Especially with the future of medicine being clearly more BPS ideology, at least for the foreseeable future.

 

I've been to Cleveland Clinic where every single doctor believed I had a medical problem. They seriously suggested I might have an autoimmune or metabolic disorder. I've received many obscure tests, including for rare autoimmune diseases. I'm getting neuropsychiatric testing next week and a brain MRI eventually. Insurance has spent over $6k on testing this year.

 

Canada:

 

Generic practitioner would actually be a good term for anyone trained in BPS stuff. It's so generic that it means nothing and applies to everything. Doesn't care about cause, is content with any generic nonsense as a "solution".

Although in marketing generic means no branding whereas here the entire ideology is all branding, but that's actually fitting in that it's backwards and of course generic products are generally low quality.

 

In any online forum what percentage claiming to be doctors, as in MDs, are actually MDs? How many are trolls? I know from personal experience that prejudice is common, but I also know that hate groups coalesce on the internet and they might not be who they claim to be. Doctors who are trolls or hate focussed will gravitate toward these sites, and while it shows there is a problem it tells us little about what percentage of the larger group they actually represent.

 

I don’t know if there is an r/vicars subreddit, but if there is, it would be full of spite and rage at thick parishioners and inept churchwardens and bastard bishops. Reddit is spectacularly unrepresentative, because it skews male, millennial and malevolent.

 

I agree. The reason why I stopped posting on Reddit is that even if I posted in a seemingly innocent subreddit (eg something about apartments etc) some people always showed up just to be rude and nasty, without even answering the question or helping in any way. It gets old very quickly. This seems to be a common thing there and thus the above example may be indeed more representative of the Reddit community actually than simply doctors' prejudice towards ME/CFS. (Which doesn't mean said prejudice doesn't exist.)

(On the other hand, I remember a subreddit that I expected to be a total shitshow because of the topic, but it was actually one of the nicest subs I've seen, kind of like "one big family". I guess moderation was probably taken more seriously there than in other subs, so it depends.)

 

I think their opinions represent the majority of the medical profession and it needs to be addressed. Their comments are what they really think of us when they say "We're not saying your symptoms aren't real" after psychogenic attribution. If social media was around in the 1960's they'd be saying the same things about MS, and Parkinson's, etc.

PS: I already made a thread for this sort of thing: https://www.s4me.info/threads/bad-me-quotes-general.8918/

 

Agree, we need trope lists. And the medical profession is bad, but it is spreading into other organisations too and is quite astounding when you compare the level of trope vs equivalent for e.g. what that would be re: race or gender or age and so on. In its totality this is 'rounding-on' a group. Distasteful to watch at best but really should be concerning others instead of people looking on and justifying it as if it is 'letting off steam' and as if kicking the vulnerable target who isn't the actual cause of the issues is acceptable as a way to do it.

Its not funny or amusing or something light we should all have to get used to as a population that 'some HCPs are just like that' really in today's day and age. When you tell laypersons an example they belittle it by assuming it is skin-deep and just the one example, and then minimise that as if there is some sensitivitity or interpretation rather than hearing it is tip of iceberg indication of how people are actually getting treated.

And all this type of crap gives people like my family, friends, those who know me permission to be horrid because hey it isn't worse than what these people say and they get away with it. So that ends up being the level of sentiment some of us get towards us as all we ever get each day every day forever. It permits noone standing in the way when the viler people of a street go rumour-mongering to get others to say horrible things or think horrible untrue things of people and for everyone to think this is an acceptable 'world' some should live their lives in: that the only contact to get is to be told, hour in hour out tropey untruths and others people's nasty mood issues and anger that is projection. It's like being the world's designated dustbin. They should all be ashamed. Of who and what they are. Because what those things are are only defined by what they do in their actions and the consequences they cause, and this is vile and intended to cause harm. For no good defined reason or excuse. Just picking on a group because they can, a group they know zero about - and certainly don't want to ever learn lest that take their 'toy' away.

How sad and pathetic can you get that you need that as your little outlet. There is nothing more sicko and thicko than that. Maybe I'll rename biopsychosocial/psychosomatics 'sicko thicko-ism' or 'sicko-thicko ideology' or 'sick-thicko misses the days you could lock women up for hysteria to make your job easier saddo ideology'.

That this crap comes out of their own heads. It isn't about us, it's about what's wrong inside them that is coming and oozing out. And they don't seem like people who should have resonsibilities over others. It is the fault of crap bystanders and poor oversight that they still do.

And it brings the good ones into disrepute and I suspect makes for a culture where they can be made to feel they can't be 'normal' and 'decent' without being outcast.

On the other hand I agree with @Trish 's sentiment that this is a dark, dirty old corner that we shouldn't be having to hurt ourselves with looking at - other minorities don't have to go looking for 'ism' pages just to see how an important profession is likely to be treating them and preventing access.

 

Good point, the BPS/psychosomatic aspect is probably the one simplistic bigotry of a 'part of medicine' that it can be mimicked and become hard to tell troll from professional - which sort of says it all about its scientific integrity, non-complexity, who it's attractive to and why, and where it really comes from.

It's like if mechanics and garages had a part of their profession that specialised in 'women can't change tyres' isms and had conferences in it. It would be easy to mimic, wouldn't require much skill and would attract both real and imposters who couldn't explain their logic (without going around in circles that don't add up in the hope the listener gives up and assumes 'it must be them) because there isn't one underneath it all, but were convinced they could.

 

It'll only change when the institutions change their ways, is my opinion. Any time put into convincing the individual or collective doctors in those reddit-threads or in other similar places is a waste of time as their pre-set conceptions of us make us incompetent by default in their opinions. So coming up with this or that piece of evidence to sway their opinion is gonna do nothing. So like @NelliePledge says I'd just steer clear of those places.

 

These people seem unusually fixated on this recently.

 

@Three Chord Monty was your post supposed to show something on reddit?

 

I got it to open a relevant reddit page when I right-clicked on the link and "opened link in new tab."

Code:

https://www.reddit.com/r/Residency/comments/13hotb3/which_medical_diagnoses_you_are_skeptical_of_in/

 

The section on POTS made for bizarre reading —

 

When you’re biased and filled with hate and prejudice, it’s easy to convince yourself that even the most blatantly physical problems like POTS are due to anxiety. I’m sure everyone remembers that crazy paper from a few months ago where they argued it was fear of standing.

 

On long Covid —

Circular much?

And this one on fibromyalgia was ironic given that BPS are literally treating exertional dyspnoea as panic disorder —