Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

@Felis Catus quoted the guy from Reddit:

'..... The vast majority recover. That is how the body works, it has cells that regenerate. What matters is having determination, fighting, and maintaining good physical condition and a healthy lifestyle. It is obvious that a muscular bodybuilder with a good diet will have a better chance of recovery than someone who stays at home inactive, eats junk food, and has no job. Resting is important but it's possible to have enough rest and a good physical condition.'


He has just blanked all the sound advice from experience of all the LC people who told him to slow down and rest. He appears to be unsavable, welded to a self-image that he was fit and healthy because of his own 'determination ..healthy lifestyle .... fighting and maintaining good physical condition', and so wrongly believing that will save him now.

It's sad. And smacks of desperation to distance himself from those who he perceives as unmotivated lazy 'couch potatoes' - people who are unfortunate enough who have the same illness as him.
Trying to keep his ego intact could cost him dear in lost capacity and more severe longer term illness.
 
Trish said:
It is sad, and concerning not just for him but for others he may influence and others he is insulting with his theories about determination being the key.

Maybe someone should send him a link to Fred Rossi's blogs, discussed on the forum, particularly the latest one.
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Or maybe Oonagh Cousins' account of how Long Covid stopped her from Olympics rowing training.
 
On AI being better for diagnoses

Interesting that most of the "diagnoses" in this article are questionable real diseases or part of the "sick tok" list of common conditions everyone can find a forum with evidence they "have."

Honestly, fine. In the outpatient setting, when AI glazes them to think they have chronic lyme, I will just decline the referral since we don't treat that.
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BrightCandle said:
On AI being better for diagnoses



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"Also, everyone thank NYT for another wave of POTS/MCAS/Dysautonomia/gastroparesis/ME/fibromyalgia appointments incoming."

Because even though POTS is measurable, treatable and by all metrics an actual real condition, we are all influenced by tiktok, I guess and not seeing the results of a global pandemic that has demonstrably increased diagnoses of all of these conditions that the poster seems to be suggesting are not real and a figment of AI's imagination.

Is "AI hallucinated your condition " the new "you're just anxious"?
 
I thought that was a really interesting reddit post.

Or go to the ones unscrupulous enough to give you what you (or AI) asks for regardless if right or wrong
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Maybe the problem isn't docs DON'T listen, maybe the problem is the systems we work for force us to see 35 outpatients with these same vague symptoms a day, and we don't have time to hit the (valid) sources/literature to follow up on you because MUH RVUs. AI is not a replacement for a curated search by someone who knows what's a bullshit source and what isn't. But the C-suite doesn't care, and the munches will publish articles like this one so they feel like they "showed those mean, dumb docs." Maybe get mad at the SYSTEM instead.
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Having seen too much of the rubbish that well meaning health advocates can spout, I have some sympathy for this doctor.

It's true, in order to help people with vague symptoms, they need more time than they get to investigate and to read the literature. If a doctor is to make a good decision about the latest medicine that the patient in front of them is demanding, they either need to have the skills and time to investigate themselves or they need good sources of information. Right now, there are not many good sources of information about these conditions and there are plenty of bad sources.
 
Interesting that most of the "diagnoses" in this article are questionable real diseases or part of the "sick tok" list of common conditions everyone can find a forum with evidence they "have."

Remind me what too many air quotes signify?

Honestly, fine. In the outpatient setting, when AI glazes them to think they have chronic lyme, I will just decline the referral since we don't treat that.

Presumably because you don't believe in that, along with the climate change that is helping to spread it. I never can quite get my brain around people who seem to brag about ignorance.

My only beef is having to pay to maintain my boards and CMEs to crosscheck AI's math and fix it's fuck ups inpatient where I am forced to see them.

I suppose he means "its fuck-ups."

Maybe the problem isn't docs DON'T listen, maybe the problem is the systems we work for force us to see 35 outpatients with these same vague symptoms a day, and we don't have time to hit the (valid) sources/literature to follow up on you because MUH RVUs

Oh, the problem clearly is at least in part due to docs don't listen.
 
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BrightCandle said:
On AI being better for diagnoses



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Geez, I don't know, if they really are (they're not) seeing 35 patients per day with those "vague symptoms", maybe someone ought to do something about it other than ranting endlessly about how they have to deal with it?

Especially since we are also complaining about it but demand solutions, while all they do is complain and refuse to do anything. They are aware that the issue is shortage of expertise. AI is the only viable answer to this, it will eventually do most of the diagnostic process, simply because there will never be enough human physicians to handle this, and that's before accounting for the demographic collapse that will make this problem even worse. Anything short of this is just a continuation of a system of mass suffering.

Also, this is the top comment:
If you ask it for a diagnosis, I'm sure it'll give one to you. It is not beholden to reality or the ethics of not mislabeling someone and derailing their life. It's easy to put a label on people, right or wrong, and walk away without any consequences -- I'm not sure it's healthcare though.
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Self-reflection skill level: 0. It is, indeed, not health care, but this is all they allow us to have. Intentionally.

Also threads like this are a stark reminder that despite promises of Long Covid changing how medicine handles this, they categorically refuse to change, and no one can make them, because the people at the top also don't want to have responsibility over it and can easily get away with criminal negligence.
 
What matters is having determination, fighting, and maintaining good physical condition and a healthy lifestyle. It is obvious that a muscular bodybuilder with a good diet will have a better chance of recovery than someone who stays at home inactive, eats junk food, and has no job. Resting is important but it's possible to have enough rest and a good physical condition.
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What a joke. I've been doing everything under the sun to improve my health for a decade with very little to show for it.
 
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