Register now for ME/CFS Advocacy Day on Capitol Hill!

ME/CFS Advocacy Day on Capitol Hill brings people with ME/CFS, their loved ones, advocates, scientists, clinicians and caregivers from across the country to meet other advocates, share their unique stories with members of congress, and call for action and research funding, together in one voice.

Check out the May ME/CFS Advocacy Week page for more information.

To register for ME/CFS Advocacy Day on Tuesday May 15, visit the registration page.

SMCI will provide:

• All needed materials for meetings with Congress
• Advocacy Training
• Scheduling of meetings with YOUR representative and/or senators
• A special rest area on Capitol Hill to make the experience as easy as possible, and to spend down time / rest time with other advocates.

You’ll be responsible for your hotel and travel to the event. SMCI is securing hotel blocks that will be available from May 12-16.

Advanced Registration is required for Tuesday, May 15th, so that we have time to set up meetings with your congressional representatives.

To learn more or to register for the event visit our registration page.

 

Interesting idea. I hope it goes well.

 

As I recall, the event went well last year.

 

Thanks - I hadn't realised this was a reoccurring thing. I can end up only semi-engaged with a lot of the US stuff (probably a mistake, as that's where things seem to be going better).

 

Looks inticing, @Emily Taylor, especially if #MEAction puts on a great DC protest on the 12th!

 

No worries. I frequently get lost in the UK stuff.

 

The Advocacy Week sounded fantastic and really well organized last year! Here's an MEpedia site with some links and info about the events in 2017: http://me-pedia.org/wiki/2017_ME/CFS_Advocacy_Week

 

Thanks for sharing the link! That’s an impressive list of face-to-face meetings from 2017!!! I hope this inspires other countries to step-up, because so far it appears that the US is leading the globe in ME advocacy.

Washington, DC face-to-face meetings

• Congressman Charles Dent (R-PA-15)
• Congressman David Price (D-NC-04)
• Congressman Jim McGovern (D-MA-02)
• Congressman Joe Courtney (D-CT-02)
• Congressman Ryan Costello (R-PA-06)
• Congressman Walter Jones (R-NC-03)
• Senator Cory Booker (D-NJ)
• Senator Dean Heller (R-NV)
• Senator Elizabeth Warren (D-MA)
• Office of Democratic Leader Nancy Pelosi (D-CA-12)
• Office of Congressman Adam Schiff (D-CA-28)
• Office of Congressman Adam Smith (D-WA-09)
• Office of Congressman Anthony Brown (D-MD-04)
• Office of Congressman Barry Loudermilk (R-GA-11)
• Office of Congressman Brian Higgins (D-NY-26)
• Office of Congressman Don Beyer (D-VA-08)
• Office of Congressman Dwight Evans (D-PA-02)
• Office of Congressman Elijah Cummings (D-MD-07)
• Office of Congressman Jamie Raskin (R-MD-08)
• Office of Congressman John Delaney (D-MD-06)
• Office of Congressman John Sarbanes (D-MD-03)
• Office of Congressman Luis Gutierrez (D-IL-04)
• Office of Congressman Mark Amodei (R-NV-02)
• Office of Congressman Mark Pocan (D-WI-02)
• Office of Congressman Mike Quigley (D-IL-05)
• Office of Congressman Patrick Meehan (R-PA-07)
• Office of Congressman Robert Pittenger (R-NC-09)
• Office of Congressman Steve Scalise (R-LA-01)
• Office of Congressman Ted Lieu (D-CA-33)
• Office of Congressman Vern Buchanan (R-FL-16)
• Office of Congresswoman Barbara Comstock (R-VA-10)
• Office of Congresswoman Bonnie Watson Coleman (D-NJ-12)
• Office of Congresswoman Eleanor Holmes Norton (D-DC-At Large)
• Office of Congresswoman Jenniffer González-Colón (R-PR-At Large)
• Office of Congresswoman Karen Bass (D-CA-37)
• Office of Congresswoman Katherine Clark (D-MA-05)
• Office of Congresswoman Lisa Blunt Rochester (D-DE-At Large)
• Office of Congresswoman Lois Frankel (D-FL-21)
• Office of Senator Ben Cardin (D-MD)
• Office of Senator Bill Cassidy (R-LA)
• Office of Senator Bob Casey (D-PA)
• Office of Senator Brian Schatz (D-HI)
• Office of Senator Catherine Cortez Masto (D-NV)
• Office of Senator Chris Van Hollen (D-MD)
• Office of Senator Christopher Coons (D-DE)
• Office of Senator Christopher Murphy (D-CT)
• Office of Senator Chuck Schumer (D-NY)
• Office of Senator David Perdue (R-GA)
• Office of Senator Dianne Feinstein (D-CA)
• Office of Senator Edward Markey (D-MA)
• Office of Senator John Cornyn (R-TX)
• Office of Senator John Kennedy (R-LA)
• Office of Senator Johnny Isakson (R-GA)
• Office of Senator Kirsten Gillibrand (D-NY)
• Office of Senator Lindsay Graham (R-SC)
• Office of Senator Maria Cantwell (D-WA)
• Office of Senator Mazie Hirono (D-HI)
• Office of Senator Pat Toomey (R-PA)
• Office of Senator Patty Murray (D-WA)
• Office of Senator Richard Blumenthal (D-CT)
• Office of Senator Richard Burr (R-NC)
• Office of Senator Richard Durbin (D-IL)
• Office of Senator Ron Johnson (R-WI)
• Office of Senator Tammy Baldwin (D-WI)
• Office of Senator Tammy Duckworth (D-IL)
• Office of Senator Ted Cruz (R-TX)
• Office of Senator Thom Tillis (R-NC)
• Office of Senator Thomas Carper (D-DE)
• Office of Senator Tim Kaine (D-VA)
• Office of Senator Tim Scott (R-SC)

 

Hi everyone,

Just a quick update for ME/CFS Advocacy Day on Capitol Hill:

I’m happy to share that the room block is now available. You can book online at: https://book.passkey.com/go/SolveMECFS

Or, if booking by phone use code “SolveMECFS” for reduced rates, free breakfast and free wifi.

More details are now available on the event webpage at: https://solvecfs.org/2nd-annual-cfs-advocacy-week/

If you have any questions, please email me at etaylor@solvecfs.org

Thanks!