JemPD
Senior Member (Voting Rights)
In theory.Completely agree, but just on one minor point: we have symptomatic relief already. Painkillers and staying in bed and stuff
But i dont have any. Staying in bed doesnt relieve my symptoms, its reduces them but i still have plenty at rest, & pain relief is hard to come by when they think the pain is 'functional'. They want us all to meditate the pain away now.
Access to pain relief is entirely dependant on the attitude of your GP, & effective relief extremely hard to come by for many. Whereas i dont imagine anyone with a biologically proven disease has to convince the Dr they are actually in pain.
I have a friend with MS & her drs bend over backwards trying to help her. Not so for the vast majority of us.
Edit: in addition if you push yr GP too hard you are likely to get a referral to pain clinic/CFS clinic who will be trying to manipulate you into having GET by another name & gaslighting CBT, and when you decline you at serious risk of having the benefits you rely on removed because then you are seen as someone who could get better but doesnt want to/is uncompliant. I dont imagine anyone with MS or Parkinsons would have any idea of the ordeal and tightrope you walk on a visit to the GP to ask for help with symptoms.
I learned long ago it was better to live with it than risk the 'punishment' of seeking help.
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