Secnidazole

[Wits_End]

Andy kindly posted this link elsewhere on the forum:

Behind a log-in/paywall.

Why the new NICE guidelines are a breakthrough for ME sufferers like me
https://www.telegraph.co.uk/health-fitness/body/new-nice-guidelines-breakthrough-sufferers-like/

However, if you scroll down to the comments, there's an interesting discussion about giardia and how someone who was prescribed secnidazole for it found her ME symptoms then vanished completely. The conclusion was that they must have been caused by something in the gut, rather than a virus. There's always a possibility that the person was misdiagnosed in the first place, of course, but secnidazole doesn't appear to be on anyone's radar here: I ran a search for it and came up with nothing. I wonder if it's something worth investigating.

 

[Art Vandelay]

I've had Secnidazole as a part of a triple antibiotic protocol for Blastocystis Hominis used by Dr Borody here in Australia. I did get some relief from my IBS symptoms but my ME symptoms largely stayed the same unfortunately.

 

[Andy]

The conclusion was that they must have been caused by something in the gut, rather than a virus. There's always a possibility that the person was misdiagnosed in the first place, of course

Lots of people with ME report a non-viral trigger for their illness. Just because someone had a viral infection doesn't mean that their ongoing symptoms are caused by that virus, as potentially the initial infection disrupted some seemingly independent system in the body. ME symptoms being maintained by the gut is an existing theory and why Invest in ME and others are looking at Fecal Matter Transplantion as a possible treatment.