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SequenceME genetic study - from Oxford Nanopore Technologies, the University of Edinburgh and Action for ME

Discussion in 'ME/CFS research news' started by Nightsong, Dec 16, 2024.

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  1. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Just to clarify that I was talking about medical research overall rather than just for ME.

    The Association of Medical Research Charities say their members spend £1.7 billion a year on research in the UK. And lots of charities that support research aren’t members (last time I checked none of the UK ME charities were members).
     
    Dolphin, Dec 29, 2024
    #61
    Binkie4, hotblack, RedFox and 8 others like this.
  2. Jacob Richter

    Jacob Richter Established Member (Voting Rights)

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    Jacob Richter, Jan 7, 2025
    #62
    Yann04, Kitty, hotblack and 5 others like this.
  3. Andy

    Andy Committee Member

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    Andy, Jan 7, 2025
    #63
    Maat, CorAnd, Jacob Richter and 4 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

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    Good to see it included. Hopefully being in this context helps people reading the article register ME/CFS as a serious issue.
     
    NelliePledge, Jan 7, 2025
    #64
    MeSci, Kitty, CorAnd and 5 others like this.
  5. Sasha

    Sasha Senior Member (Voting Rights)

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    What sort of work does AfME do in this context?
     
    Sasha, Jan 15, 2025 at 1:20 PM
    #65
    Peter Trewhitt, Kitty and Jacob Richter like this.
  6. Andy

    Andy Committee Member

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    All the non-science stuff. In this case bringing the other partners together in this collaboration and working on various options for potential funding, both institutional and philanthropic.
     
    Andy, Jan 15, 2025 at 3:59 PM
    #66
    Amw66, Kitty, Trish and 3 others like this.
  7. Andy

    Andy Committee Member

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    As an additional note, I've had it fed back to me that those working on funding possibilities for this project have found the suggestions made in this thread to be useful, so thank you all for those.
     
    Andy, Jan 15, 2025 at 4:03 PM
    #67
    Possibly James May, Amw66, NelliePledge and 8 others like this.
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