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afme

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  1. Phoebe
    Thread

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    In November last year Action for ME invited people with ME to complete a questionnaire describing their experience of ME. The responses were...
    Thread by: Phoebe, May 20, 2022, 0 replies, in forum: Advocacy Projects and Campaigns
  2. Sly Saint
    Thread

    Bristol Chronic Fatigue Syndrome/ME Service changes its name to Bristol M.E. Service

    Bristol M.E. Service: Supporting people with M.E./CFS and PVFS across Gloucestershire, Bristol and North Somerset We have renamed our Service...
    Thread by: Sly Saint, Oct 4, 2021, 29 replies, in forum: General ME/CFS news
  3. Andy
    Thread

    UK Action for ME petition: 'Equity for ME' asking UK governments for equity of recognition and research funding with long Covid. closes 26th Nov 2021

    [MEDIA]
    Thread by: Andy, Aug 4, 2021, 21 replies, in forum: Petitions
  4. Hutan
    Thread

    UK Action for ME - policies, actions and publications - discussion thread

    A number of earlier threads have commented on AfME documents and webpages: 'Pacing for people with M.E.' Action for ME booklet - revised and...
    Thread by: Hutan, Jul 26, 2021, 55 replies, in forum: General Advocacy Discussions
  5. Andy
    Thread

    United Kingdom: Action for ME (AfME) news

    A thread for updates and news from the UK charity, Action for ME (https://www.actionforme.org.uk/) Moderator note: Please use this thread to...
    Thread by: Andy, Jan 7, 2021, 152 replies, in forum: News from organisations
  6. Andy
    Thread

    Open UK: Action for ME's list of current research projects recruiting.

    People with M.E. often ask us how they can get involved with research. If you haven't registered your interest to potentially take part in...
    Thread by: Andy, Mar 5, 2021, 27 replies, in forum: Recruitment into current ME/CFS research studies
  7. Andy
    Thread

    Action for ME: UK-wide self-advocacy online workshop, Wednesday 10 March from 2 - 4pm.

    Following the success of our recent advocacy workshops for people in Bath and North East Somerset, we’re pleased to announce that we will repeat...
    Thread by: Andy, Feb 11, 2021, 0 replies, in forum: Advocacy Projects and Campaigns
  8. Andy
    Thread

    Action for M.E. 2020 Annual General Meeting, Thursday 15th October, 1.30pm to 3pm

    All are welcome to join us online for our 2020 Annual General Meeting. Action for M.E. staff and Trustees will give an overview of our services,...
    Thread by: Andy, Oct 5, 2020, 1 replies, in forum: General ME/CFS news
  9. Andy
    Thread

    UK: Action for ME: Sign our letter calling to halt the disability tax

    Posting this as I'd imagine a huge number of us would be negatively affected by this tax if it comes in. Action for M.E. Chief Executive Sonya...
    Thread by: Andy, Aug 13, 2020, 5 replies, in forum: General disability topics and advocacy
  10. Andy
    Thread

    UK: Priority Setting Partnership for ME/CFS

    This being announced/launched today at the CMRC conference, see UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020 for...
    Thread by: Andy, Mar 10, 2020, 232 replies, in forum: Advocacy Projects and Campaigns
  11. Sly Saint
    Thread

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019...
    Thread by: Sly Saint, Jan 26, 2020, 219 replies, in forum: News from organisations
  12. Dolphin
    Thread

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
    Thread by: Dolphin, Jan 23, 2020, 133 replies, in forum: Monitoring and pacing
  13. Sly Saint
    Thread

    Article in Guardian: UK benevolent funds hand out £216m as hardship grows - features Emily Beardall (AfME) Jan 2020

    Emily Beardall, 44, had just qualified with a degree in pharmacy when she was diagnosed with myalgic encephalomyelitis (ME). “I couldn’t work. It...
    Thread by: Sly Saint, Jan 20, 2020, 12 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    Action for ME: GP home visits under threat

    Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by...
    Thread by: Andy, Nov 20, 2019, 25 replies, in forum: General disability topics and advocacy
  15. Sly Saint
    Thread

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    this website https://web.archive.org/web/20190914091905/http://www.afme.org.uk/ we discussed it at the other place and some people thought it...
    Thread by: Sly Saint, Oct 30, 2019, 13 replies, in forum: Advocacy Action Alerts
  16. Andy
    Thread

    SEN Magazine: "ME and you" by Mary-Jane Willows

    Mary-Jane Willows explains how schools can support pupils with ME What’s the biggest cause of health-related long-term school absence? The...
    Thread by: Andy, Oct 24, 2019, 7 replies, in forum: General ME/CFS news
  17. Trish
    Thread

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for...
    Thread by: Trish, Oct 20, 2019, 24 replies, in forum: Open Letters and Replies
  18. Sly Saint
    Thread

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    write up on AfME website: What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to...
    Thread by: Sly Saint, Sep 27, 2019, 29 replies, in forum: General ME/CFS news
  19. Sly Saint
    Thread

    The Sun article - INVISIBLE ILLNESS The 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed (Aug 2019)

    Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. Muscle aches and four other signs your...
    Thread by: Sly Saint, Aug 14, 2019, 8 replies, in forum: General ME/CFS news
  20. Sly Saint
    Thread

    Action for M.E. 2019 AGM and conference 15th October 2019

    Tuesday, 15 October 2019, 10:00 AM - 4:30 PM same venue as last year Bishops Square, London, E1 6AD, United Kingdom About the Event The...
    Thread by: Sly Saint, Aug 12, 2019, 95 replies, in forum: General ME/CFS news
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