Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

The use of "recovery" was a distortion of English. In the text, they said that "recovery" in their use only meant "recovery from the current episode." So they meant "remission" at best. And they deflected criticism of their use of "recovery" at one point by saying, well, we explained what we meant in the paper itself. But of course they didn't object to headlines proclaiming that "recovery" is possible.

In their use of language, words like "recovery" have no fixed meaning. They mean whatever White et al want them to mean at that moment.

 

The specialist nurse (paediatric) tried suggesting that it was the stress of GCSE's that caused my daughter's ME!!
She developed it after viral labyrinthitis in the October, so at least 4 months after her exams finished.
It was in the days when there was a fair amount of coursework and exams that counted towards final marks happening the previous year.
Therefore NOT loads of pressure for the final set of exams. She's bright, had worked steadily and done well prior to them. She was NOT that stressed at all.

 

They should emphasize on functionality- how well the person deals with his or her life and environment after trauma/illness. There are different levels of disability.

 

Oddly enough, it's all about symptoms. Weird. Some people have been insisting for years that it's not about symptoms. Even though of course it's all about symptoms.

https://twitter.com/user/status/1336586595043074048

 

https://twitter.com/user/status/1336592404091195393

https://twitter.com/user/status/1336592696182530055

https://twitter.com/user/status/1336627807376584704

https://twitter.com/user/status/1336628334080512003

 

Weird. Recovery means recovery.

Maybe we need to put it on a bus?