Solve ME/CFS Initiative: ME/CFS Advocacy Week and DC Lobby Day 2019

Andy

Andy

Retired committee member
Welcome to ME/CFS Advocacy Week and DC Lobby Day 2019

ME/CFS Advocacy Week brings people with ME, their loved ones, advocates, scientists, clinicians and caregivers from across the country together to call for more action and research funding, meet other advocates, and share their unique stories with members of congress, together in one voice. The keystone event of ME/CFS Advocacy Week is Washington DC Lobby Day, a full-day Capitol Hill storm where hundreds of advocates meet face to face with members of congress and their staff.
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http://lobby19.solvecfs.org/

ETA: correcting link.
 
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So much going on that it's getting confusing from the inside of an org. I can only imagine what it's like if you haven't been working on it personally... :D
 
2020 dates announced.

ME/CFS Advocacy week returns from April 19 – 26, 2020. Online actions and social media campaigns will be active throughout the week. In-Person events will take place in Washington DC and at the National Institutes of Health Bethesda, MD campus from Sunday April 19, 2020 – Wednesday April 22, 2020.

Tuesday April 21, 2019 will be our ME/CFS Advocacy Day on Capitol Hill. It is free to participate for all events in-person but, REGISTRATION is required to participate in ME/CFS Advocacy Day on Tuesday April 21, 2020.
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http://lobby20.solvecfs.org/


Moderator note:
New thread has been created for 2020 event.
https://www.s4me.info/threads/solve-me-cfs-initiative-me-cfs-advocacy-week-and-dc-lobby-day-2020.11932/
 
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