Special screening of Unrest for MPs and honoured guests - oct 24

TiredSam said:
I'm pond-ering your new avatar @Barry
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Hutan said:
I'm laking it. :)

Channeling Monet Barry? I'm going more minimalist than impressionist with my avatar.
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I could try to pretend there is something deep and mysterious about it, but no. I had a very fraught evening sorting out the avatars bit of the user manual, mistakes compounding mistakes, and I was using my own avatar setting to grab screen shots of. Going through photos, and one I picked seemed interesting - tree roots growing on side of a bank on Dartmoor, but then realised it was much too dark and brooding to put on a help section for PwME. So I went for something more pleasing, and for the moment that's my avatar. It may change in dues course :). "Laking it ... ", "pond-ering" - we really do need a groany smily :p:D.
 
Trish said:
@Jonathan Edwards can you tell us how the Q and A session after the film went? Did you get the impression there were MP's interested enough to follow this up with any kind of action?
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MPs did not contribute to the discussion directly as far as I know. The MPs present looked as if they were already interested in advocating for more research for ME but I do not think any specific opportunities were identified. I don't think anyone was expecting that.
 
Jonathan Edwards said:
MPs did not contribute to the discussion directly as far as I know. The MPs present looked as if they were already interested in advocating for more research for ME but I do not think any specific opportunities were identified. I don't think anyone was expecting that.
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@Jonathan Edwards

Was there any specific feedback from the MPs?
We're planning a screening for Parliamentarians in Canada and that kind of info might be helpful.

Thanks.
 
brf said:
@Jonathan Edwards

Was there any specific feedback from the MPs?
We're planning a screening for Parliamentarians in Canada and that kind of info might be helpful.

Thanks.
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There was no slot for any feedback. I think that was right. Lady Mar and Charles and Jen and Jessica put their story to the representatives of the people. It would have been crass to ask for a response. I think everyone was grateful that MPs came and sat right through and several made it clear they were supportive. It was a way to build and cement friendships. MPs after all are not the legislature. They are there to be our advocates when the legislature chooses to act. I think it is good that this process is kept separate from lobbying government as such. That has been done as well, but the rules of engagement are different.
 
Jonathan Edwards said:
There was no slot for any feedback. I think that was right. Lady Mar and Charles and Jen and Jessica put their story to the representatives of the people. It would have been crass to ask for a response. I think everyone was grateful that MPs came and sat right through and several made it clear they were supportive. It was a way to build and cement friendships. MPs after all are not the legislature. They are there to be our advocates when the legislature chooses to act. I think it is good that this process is kept separate from lobbying government as such. That has been done as well, but the rules of engagement are different.
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@Jonathan Edwards

Quite right.
I was thinking more in terms of venue or how open or receptive they were, but you've mentioned here they were very supportive.

Thanks!
 
A couple of kind souls on a FB group posted some tweets for me which I've reposted on our FB site but am having difficulty linking to here for some reason.

It's encouraging to see so many MPs talk about about the impact the film had on them.
 
What Did the Parliamentary Unrest Event Achieve?
sarah reed

Despite knowing the issues facing people with Myalgic Encephalomyelitis (ME) should concern MP’s from across the political divide, it has been hard work to engage them to our cause. The APPG (All Party Parliamentary Group) for ME was disbanded in June this year and we needed new ways to recruit much needed support for the ME community.

When the ME Association secured the Speaker’s State Rooms for a special parliamentary screening of the film, Unrest, it had the potential to be a game changer.

The timing of the event couldn’t have been better. When NICE declared that it was proposing NOT to update their guideline for ME (CG53) last summer, it provided the whole community with an excellent campaigning opportunity.
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http://www.meaction.net/2017/11/01/what-did-the-parliamentary-unrest-event-achieve/
 
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