This seems to be the result of the crowd funding a while back see thread: https://www.s4me.info/threads/crowd...with-a-duty-of-care-towards-me-patients.5623/ https://www.stripylightbulb.com/ eta: More information: http://www.bqlive.co.uk/healthcare-...eur-index-nominee-stripy-lightbulb-cic-34902/ https://twitter.com/user/status/1090934673482625025
Looking at the website I am still not sure we have that much more information to adequately evaluate what they offer than when the crowd funding was discussed in the thread that @Sly Saint links to above. We said before it was an interesting idea, it still is; we also asked why it does not appear to link in with the charities and groups already working in this field, it still seems not to; and we said that we needed to have more information for us to be confident of content, which also still seems to be the case. Glancing at the website there is nothing that I immediately wanted to take issue with, but a number of times I wanted to ask what is the evidence for this statement, is this an over simplification, is this going beyond what we can currently justify? At present the site is a good at easy access to some main bullet points, but does it have the depth of information and analysis behind it to make that useful start really worth while. It may do but there is no clear indication that it does. I am left feeling it could in theory be a useful contribution to awareness and training, but worrying about the dangers of focusing on the experience and views of primarily one person. I would be much happier in there were formal links with such as the MEA or to a broader patient community representation in their management structure or oversight system. Historically this is very much an issue for ME where it is not uncommon for individuals to become over evangelical about their own personal 'insights' or for them to have an ideological axe to grind. My personal experience is that though I might have confidence in my own knowledge, when it is tested by the broader discussion of such as our threads here at S4ME, there are gaps and biases that I was completely unaware of. There is nothing on Stripy Lightbulb site that suggests they have any mechanism for getting broad or balanced assesment or evaluation of their content.
I’m sceptical about the value of feedback questionnaires from experience of training evaluation at my old employer and from CFS/me clinic. ETA. I mean in the sense that training providers tend to use of on the spot “happy sheets”. I recognise the value in evaluation using anonymised surveys some time after the activity. From my old career I know that surveys of how employees feel about various aspects of working in an organisation can be informative So I support the idea of patient surveys too.
The e-learning modules are now up and running. Would be interesting to know the content but apart from paying the £69 don't know how. https://www.stripylightbulb.com/why/healthcare/ doesn't seem to be very difficult to get CPD accreditation for things like this. https://thecpdaccreditation.group/
Maybe their hope is to get loads of the 'reformed sick' to be the educators. Don't want to make it too taxing. Completing the circuit to shine the light so to speak.
Blog Admit It So That We Can Progress Aug 21st 2019 Sally Callow @PhysiosforME rest of blog here: https://www.stripylightbulb.com/2019/08/21/admit-it-so-that-we-can-progress/#more-544 anyone have any info on what is included in the training course?
We have a big meeting coming up with our professional body in a couple of weeks so preparation for that is taking up all our time. We are keen to look at this and the course from the Workwell Foundation in more detail as soon as we can.
Don't assuM.E - Educational Talk and Film Screening about M.E/C.F.S March 11 2020 Good to see VfTS being used. @Natalie eta: https://www.eventbrite.co.uk/e/dont...ilm-screening-about-mecfs-tickets-96625572689
short video of Sally Callows introduction: https://www.youtube.com/watch?v=hQ_4XLd9HpQ (apart from general background info, mostly talked about 'mildly affected' patients ie those still able to work)