Stuart Murdoch (of Belle and Sebastian)

Statins are used by some US gastroenterologists to treat SIBO. Depends on results of methane breath test.
.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4737270/
There are some other papers.

 

Link to this new video

 

I don't entirely agree, because outside of ME advocacy groups most people are not primed, and will be able to see Stuart Murdoch's comments about being positive simply for what they are, and read nothing more into it. He makes it very clear there is no cure, and that symptom management and coping skills are all there is. Before, and soon after, my wife got sick, I would not have misunderstood what he is saying here, and I think it would have helped. But my wife and I have always believed in trying to stay positive anyway, and becoming ill does not change that.

 

Staurt has gone several decades managing his ME pretty well - he seems to have remained mild-moderate and has carved out a successful, active career and he seems genuinley happy and content. Maybe this was luck. But part of me can see how his attitude to his illness may have helped. As he explains in his latest video, he had to accept the illness and live with it, and he took this route instead of becoming bitter and full of anger. Now some anger is warranted - especially for advocacy - and some bitterness is almost a given. But yes, it's about balanace. He's a level-headed and sensible bloke doing something he loves, and I'm sure this has played at least a small role in him keeping stress levels down and keeping some symptoms in check.

I'm glad he decided to upload a video so soon after the positive treatment video - it just shows the frustrating pattern of fluctuation of symptoms and how this drives mood!

 

Since there has been some brief talk of statins in this thread, and Stuart talked about them in the video, I felt I should mention that they may not be good for mitochondrial function.
Link : Coenzyme Q10 and Statin-Induced Mitochondrial Dysfunction

 

https://www.heraldscotland.com/news/17584375.belle-sebastian-frontman-stuart-murdoch-on-me-battle/

 

https://twitter.com/user/status/1120319027061174272

 

Chris ponting expects to set up genetics study next year, with what funds?

 

Sounds just like my progression too..For a year I just wasnt feeling right, and training seemed to make me feel worse. Weirdly fatigued at the end of the day. I actually managed to get an A when I then eventually got full blown ME at uni, which im pretty proud of, but that exam was one of the most distressing things i have ever fought through i have to say.. Brain fog, anxiety, exhaustion etc.. Only possible because i had studied prior to getting ill. Had to go to the toilet and close my eyes multiple times, wondering what the heck was going on.. they probably wondered if i was cheating

I`m glad hes comfortable advocating about it again. Its certainly not comfortable to do when u know ur looked upon as a second-class citizen!

 

'Belle and Sebastian’s Stuart Murdoch will publish his debut novel, Nobody’s Empire, in September 2024 [...]. Part memoir and part fiction, the novel is set in Glasgow and California in the early 1990s and follows a character searching for “a new-world reinvention” after his hospitalization with chronic fatigue syndrome. [...]

“I drifted into writing Nobody’s Empire. It felt like the right time to tell this story in long-form, even though I have been singing about it for years. I imagined I was writing it for the [myalgic encephalomyelitis and chronic fatigue syndrome] community and as the book went on it became more important to me, gaining a life of its own. I needed it as much as it needed me and I leant heavily on it for solace.'

https://pitchfork.com/news/belle-and-sebastians-stuart-murdoch-to-publish-debut-novel/

 

Not on the novel as far as I know but I just came across the following podcast from last year where among other things according to this twitter post Stuart discusses the illness

I also saw a Tumblr post for the podcast with the ME/CFS hashtag used.

https://podcasts.apple.com/jp/podca...m-gladwell-bruce/id1311004083?i=1000561763859

 

"Everybody has a story" - a talk with Stuart Murdoch
September 20, 2024

In a recent InterAction article, we spoke to Scottish singer-songwriter Stuart Murdoch about his journey with ME, which he shares in his new book, Nobody's Empire.


Speed read
Stuart Murdoch has lived with ME for over 30 years. He has manage to build a slow career in music and is the lead signer in the band Belle and Sebastian. Stuart reflects on storytelling (particularly in his new novel), his journey with ME and his sense of belonging in the ME community. He wants to make a difference and raise awareness. He shares his certainty that no life is ever wasted.

Continues at:
https://www.actionforme.org.uk/news/a-talk-with-stuart-murdoch/

 

Stuart Murdoch of Belle and Sebastian: ‘My wife said to me, don’t put any sex in the book.’ Photograph: Katherine Anne Rose/The Observer
Books interview
Fiction

Interview
Stuart Murdoch: ‘I feel like this book will be the Trainspotting of ME’
Killian Fox
The Belle and Sebastian musician on his new novel, inspired by his long struggle with chronic fatigue, choirs and his love of Victorian authors


Sat 28 Sep 2024 19.00 CEST
https://www.theguardian.com/books/2...ike-this-book-will-be-the-trainspotting-of-me

 

Stuart Murdoch: ‘I feel like this book will be the Trainspotting of ME’ (msn.com)

 

Thanks for sharing.

I never saw the movie Trainspotting (I know, I know... ) so don't quite understand what S. Murdoch means when he says he hopes his book will be like Trainspotting for ME. Like bringing something out to a wider audience?

 

I only saw Trainspotting as a teen, so not very recently but I remember there were some pretty disgusting (drug-related) scenes in it and my first thought was maybe he somehow wants to show the ugly or shocking side of the disease or similar.

But I'm probably wrong as this is the paragraph about this:

His ME/CFS started in the 80s but it improved a lot after years of living with the disease. The main character in Trainspotting

Spoiler: spoiler

has a drug problem but eventually leaves the junkie lifestyle behind and starts a new life

. So I guess that's probably the similarity or inspirational part? I don't know, I haven't read the book obviously but this is my guess based on that paragraph.

 

I think Murdoch has been misquoted in the press about trainspotting. It was on twitter. It was a reference to how some people with ME might think his book is a bit lite and like watching trainspotting after reading the book.

Not that it's like trainspotting, he said it was a bad metaphor.

The book from it's prerelease doesn't look anything like the harshness of Trainspotting. But is a good hook for the press.

I'm not sure it will do pwME any favours as it looks like a feeling good, yes I can still overcome story. But haven't read it yet.

Let's just hope it isn't ghostwritten as he claims he isn't a reader. Which is never a good sign for an author.

 

ah, that would make more sense, yes.