The Born Free Protocol

Trish said:
I think it's better to ask, what evidence is there to support this protocol? We have not seen any clinical trial research to support it, nor, as far as I know, even any medically supervised and assessed published case studies.

There have been decades of people inventing treatment protocols with no sound evidence. There are usually a few fans who claim they were cured, and dozens or possibly in these days of amplification via social media, thousands who try these protocols and find all they do is disappoint and waste effort and money.

Desperate people will try all sorts of things, many of us have done so.
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Thank you for your message :)

For my part, from what I am trying to understand from these videos which last several hours if we combine them, he has published, certainly not in medical journals, but this theory seems to be exposed for free on his site, YouTube and in the Discord.

Yes, this does not give credibility to a publication in the journal “Nature”. But I'm not looking for people who want to shine, I'm looking for things that can work.

Afterwards I understand your reasoning, but he also seems to communicate with the OMF, isn't that encouraging?

I'm all for scientific evidence, but a lot of times things don't fit that timeline.
 
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). Long COVID / Long Haulers. Viral / Post-Viral Chronic Fatigue. Post-Exertional Malaise (PEM). “Floxed”. Migraines. Breathlessness. Hypoxia. Acidosis. Alkalosis / pH Dysregulation. Dysregulated Cortisol. Dyslipidemia. Alopecia. Post Finasteride Syndrome (PFS). Post SSRI Sexual Dysfunction (PSSD). Post Accutane Syndrome. Small Fibre Peripheral Neuropathy (SFPN). Mast Cell Activation Syndrome (MCAS). Diamine Oxidase (DAO) Deficiency. Histamine intolerance. Brain Fog. Sleep disorders. Major and other types of Depression. Anxiety. Postural Orthostatic Tachycardia Syndrome (POTS). Autism Spectrum Disorders (ASD). Chronic Inflammatory Response Syndrome (CIRS). Fibromyalgia. Dysautonomia. Frequent Urination. GI Disorders. “Small Intestinal Bowel Overgrowth” (SIBO). Vitamin B6 Toxicity. Vitamin A Toxicity. Candidiasis. Aspergillosis. Ehlers Danlos Syndrome (EDS). Joint Pain. Connective Tissue Disorders. Tinnitus. Polycystic Ovary Syndrome (PCOS). Erectile Dysfunction. Elevated Cholesterols / Fasting Glucose / D-Dimer. Hashimotos
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This to my way of thinking is a huge red flag. Anytime a protocol can cure or help with this many health conditions, I know I'm reading a load of BS. I would have thought that by 2024 we would have moved past this type of nonsense when it comes to ME/CFS. A person would have to mortgage their house or rob a bank to be able to afford to purchase even half the supplements being recommended.
 
@Matth, can you tell us more about what your interest is in this protocol? Are you trying it yourself, or interested in discussing some aspect of the scientific or clinical justifications Leisk makes for it?

When we heard about it from Leisk a few years ago, he was persuading some very sick people to be his experimental subjects without any ethics committee approval or scientific justification that made any sense to us.

He is not a clinician or scientist, and persuading people to spend a lot of money and risk their health on a made up protocol with outlandish claims of treating a wide range of unrelated conditions, is in my view highly unethical.

I doubt anyone here will want to spend more time reading or watching hours of videos about his latest claims.

If he gets ethics approval and runs a proper clinical trial, as he said he was going to do back then, and publishes the results, then we will no doubt look at it again.
 
TigerLilea said:
Anytime a protocol can cure or help with this many health conditions, I know I'm reading a load of BS.
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Sounds awfully like Daffy's Elixir, doesn't it.

That was advertised for:

The Stone in Babies and Children; Convulsion fits; Consumption and Bad Digestives; Agues; Piles; Surfeits; Fits of the Mother and Vapours from the Spleen; Green Sickness; Children's Distempers, whether the Worms, Rickets, Stones, Convulsions, Gripes, King's Evil, Joint Evil or any other disorder proceeding from Wind or Crudities; Gout and Rheumatism; Stone or Gravel in the Kidnies; Cholic and Griping of the Bowels; the Phthisic (both as cure and preventative provided always that the patient be moderate in drinking, have a care to prevent taking cold and keep a good diet); Dropsy and Scurvy.

It was apparently sold until the 19th century, the recipe having been devised in the late 1600s. The only real change since then is the means of advertising.
 
This was from 2016
Meet the Scientists: Dr Menon

Now that the US Agency for Healthcare Research and Quality has downgraded the conclusions for graded exercise and cognitive behavioural therapy (and the PACE trial methodology has been found wanting by scientists in the field), do you think more attention will be paid to your work?
In my opinion the likely management will not be a single modality and rather a combination of medications, psychotherapy as well as some graded exercise. CFS is a syndrome with multiple variables in its presentation as well as management and reductionism will not serve it well.

Why is this study in the Professorial Unit when the USA’s National Institute of Medicine’s 2015 report Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome “stresses that SEID is a medical — not a psychiatric or psychological — illness”, rather than the university’s School of Biosciences for example?
As a psychiatrist my interest is largely related to the neuropsychiatric aspects of CFS. Whilst CFS is not a psychiatric illness over two thirds of patients with CFS have associated mood or anxiety disorders. The primary outcome measure of this study is alleviation of fatigue rather than psychiatric symptoms.

LINK
 


Next ME/LC @RenegadeRes Roundtable is Fri July 11 at SPECIAL TIME of 2:30 PM EDT US w Josh Leisk @joshual_tm, independent Theoretical Biochemist from Sydney, Australia, known for the Born Free Protocol, and Renegade Research med director @doc4care. Registration link in thread.

“Independent Theoretical Biochemist”

Gotta love that title.

ETA. He is also wearing a white lab coat in the photo… he must be a serious scientist.
 
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