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The draft updated NICE guidance for ME/CFS highlights the unreliability [...], Vink& Vink-Niese, JoHP 2021

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by MSEsperanza, Jan 28, 2021.

  1. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Vink M, Vink-Niese A. The draft updated NICE guidance for ME/CFS highlights the unreliability of subjective outcome measures in non-blinded trials. Journal of Health Psychology. January 2021 (Editorial), doi:10.1177/1359105321990810

    https://journals.sagepub.com/doi/full/10.1177/1359105321990810

    Abstract
     
    Last edited: Jan 28, 2021
  2. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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  3. Dolphin

    Dolphin Senior Member (Voting Rights)

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    What was found in Jason et al?

    The BMJ Dubbo paper said 12% at 6 months and 9% at 12 months. I remember Cort Johnson saying something like he heard (possibly from correspondence with Andrew Lloyd?) the figure was really low at 2 years (I think 1-2%) in Dubbo but I never saw anything about it elsewhere: anyone have any info on it?
     
    Last edited: Jan 28, 2021
  4. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Sorry I posted the wrong study. Didn’t he do one that followed outcomes up to 24 months or am I mistaken?
     
    Last edited: Jan 28, 2021
  5. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Yes, he did.
    https://pubmed.ncbi.nlm.nih.gov/23263024/
     
  6. Trish

    Trish Moderator Staff Member

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    I just got around to reading this. I think it is a very useful paper to use to inform health providers that exercise is not 'good for everybody', as Dr Clare Gerada recently pronounced on BBC TV.

    It's short and to the point and easily readable, with plenty of links to evidence in support.

    Thank you very much @Mark Vink for this valuable and timely work.
     

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