The International Society of Long COVID and Post-Acute Infection Syndromes (ISLC–PAIS)

[Chandelier]

ISLC–PAIS · International Society for Long COVID & PAIS

A global scientific coalition advancing evidence-based research, clinical care and patient partnership for Long COVID and Post-Acute Infection Syndromes.

islc-pais.com

A United Scientific Response​

The International Society of Long COVID and Post-Acute Infection Syndromes — a global coalition of clinicians, researchers and advocates advancing evidence-based care.

MISSION​

To advance the global understanding, diagnosis, treatment, management, prevention and rehabilitation of Long COVID & PAIS by fostering collaboration, supporting individuals, communities and healthcare professionals, and promoting equity in care and research.

OUR VALUES​

Five principles that shape every decision we make.​

Scientific & Clinical Excellence​

Rigorous, transparent, evidence-based research that translates responsibly into care.

Patient Partnership​

Lived experience is essential expertise — patients are partners, not subjects.

Global Collaboration​

Equitable international partnership across regions and disciplines.

Equity & Access​

Reducing disparities in recognition, diagnosis and care for all affected communities.

Respect & Transparency​

Open governance, clear communication, accountable collaboration.

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SUPPORT ISLC–PAIS

Help us advance research and patient-centred care.​

Become a Member​

Join clinicians, researchers and advocates driving evidence-based care for Long COVID and PAIS.

Volunteer​

Offer clinical, scientific, technical, administrative or creative skills to shape our initiatives.

Sponsor or Partner​

Academic institutions, non-profits and aligned organisations are welcome to collaborate.

Stay Connected​

Sign up for updates — research news, working-group briefings and conference invitations.

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SAVE THE DATE

Inaugural ISLC–PAIS Conference​

26 – 29 August 2026 · Amsterdam. Four days of structured, interdisciplinary cross-pollination on Long COVID & PAIS.

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EXECUTIVE COMMITTEE

Independent LC Work Group​

The executive body steering the society's strategy, programmes, and partnerships.

CHAIR

ANDREW EWING​

Professor of Chemistry and Molecular Biology

University of Gothenburg

VICE-CHAIR

DAVID JOFFE​

Senior Staff Physician

Royal North Shore Hospital

MEMBERS​

DANNY ALTMANN​

Professor of Immunology

Imperial College London

DANIELLE BECKMAN​

Senior Scientist

Helmholtz Munich

STEPHANE BILODEAU​

Chairman of the Board

Smart Phases (Novacab)

ANNA BROOKS​

Senior Research Fellow

University of Auckland

DANILO BUONSENSO​

Pediatrician, Expert in Pediatric Infectious Diseases

Gemelli University Hospital

JENNIFER CURTIN​

Co-founder & Chief Medical Officer

RTHM Inc.

RAE DUNCAN​

Consultant Cardiologist & Long COVID Physician and Researcher

Newcastle Hospitals NHS Foundation Trust

MARK FAGHY​

Professor of Clinical Exercise Physiology

Loughborough University

LEO GALLAND​

Internist

Galland Health

LESLIE KASZA​

Cardiologist

University of Alberta

ASAD KHAN​

Respiratory Consultant

Long COVID Patient Advocate

NANCY MALEK​

Senior Consultant Anaesthetist

RESIA PRETORIUS​

Vice-dean Research and Postgraduate Students

Stellenbosch University

DAVID PUTRINO​

Director of Rehabilitation Innovation

Icahn School of Medicine at Mount Sinai

SATISH RAJ​

Professor of Cardiac Sciences

University of Calgary

ILENE RUHOY​

Director of Neuroimmune and Connective Tissue Neurology

Atria Health and Research Institute

ŠPELA ŠALAMON​

Nuclear Medicine Physician

Freelance

LIZA TÓTH​

US Intellectual Property Attorney (retired)

ROB WÜST​

Associate Professor, Muscle Metabolism

VU Amsterdam

 

[Solstice]

Was going through the entire list of attendees for this. A lot of very well known researchers. A good number I didn't know, from the Netherlands. Which isn't surprising given the venue.

Notable for me was that I couldn't find any researcher connected to the Rosmalen-led MELines project. There are 2 people from ZonMW giving a talk however.

 

[Chandelier]

From Bluesky:

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​

Danielle Beckman @daniellebeckman.bsky.social​

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The @islc-pais.bsky.social conference website has been attacked and hacked *again*.​

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At some point, you have to ask: who benefits from repeatedly disrupting scientific communication about #LongCOVID?​

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For now, please do not click any links sent from or through islc-pais.org​

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Stay safe​

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OCR of attached images:

2 OCTOBER 2026

Website temporarily
unavailable

On 1 October 2026, we discovered that our website had been hacked. We
have confirmed unauthorised administrator access and malicious code. We are investigating how this happened and working to restore the website securely, including access to purchased Video on Demand and
Patient Recap sessions. The incident concerns information stored on this website, including user
accounts, purchase records and...

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We have reported the personal data breach to the Dutch Data Protection Authority. We have also contacted the police. We are preparing a direct notification to potentially affected
individuals. As a non-profit foundation run by a
small team with limited resources, this is a deeply disappointing setback. We understand the concern
and inconvenience it causes, particularly for those waiting to access sessions they have purchased. We are making every effort to restore access as quickly as possible while ensuring it is safe to do so. We cannot yet confirm a restoration date, but we will share
updates as our work progresses. Please be alert to unexpected messages or payment requests
claiming to come from the...