The PACE Trial and why CFS-patients don't get treatment - David Tuller interview

[Barry]

Doctor of Public Health and journalist David Tuller from University of California, Berkeley discusses the PACE Trial, a study that claimed that Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) can be cured with therapy and exercise. The study violated multiple principles of scientific investigations and the reanalysis of the data concluded that no one recovered from the treatments. The study is still cited widely and because of this many disabled people are being left without treatment and benefits.

Interestingly, when I did my usual "ME/CFS" google search in past 24 hours, it came up near the top of the first page:


A neat counterpoint to the Gupta guff.

 

[Hutan]

Very nicely done. @dave30th
At just short of 15 minutes, this video is a good summary of why PACE and other smaller studies like it are not evidence supporting graded exercise or CBT treatments for ME/CFS.

 

[Snowdrop]

Requesting a transcript of this in your queue please @Sly Saint .

 

[Daisymay]

Excellent interview!

 

[Sly Saint]

Requesting a transcript of this in your queue please @Sly Saint .

Copy of the transcript from subtitles (accurate as far as I can make out unlike the Youtube generated ones)

 

[Snowdrop]

@Sly Saint

Thanks so much.