The Puzzle Solver by Tracie White

Received an email this morning from Book Depository saying Puzzle Solver is back in stock although when I activated the link, it still says it is currently unavailable! I think I'll be waiting till Feb 4th for my copy but if you are really anxious to read it sooner, give it a couple of days and try again because it seems that they have copies somewhere as @mango indicated.

Following review quotes are from Book Depository page
Review quote
"The Puzzle Solver is a compelling story of the love of a father who as a scientist preserved through a maze of uncertainty to help his son. Anyone who has endured undiagnosed chronic illness or has been subjected to the blanket dismissal of the medical community will find refuge in this book. The personal sense of responsibility coupled with the journey for acceptance of this disease as having a biological basis is nothing short of inspiring. A reminder that our lives can change in an instant, are are ultimately dependent upon our love for each other."--Rana Awdish, MD, author of In Shock

About Tracie White
Tracie White is an award-winning journalist and a science writer for Stanford University. Her work, which has garnered 23 writing awards, has also appeared in Salon, the Los Angeles Times, the San Francisco Chronicle, and more. She graduated from UC Berkley and has a master's degree in journalism from Northwestern University. She lives in Aptos, California. Ronald W. Davis, PhD, has been called one of the world's greatest living inventors by the Atlantic. He is a professor of Biochemistry and Genetics at Stanford University and director of the Stanford Genome Technology Center. He has won numerous awards for his research, including the Gruber Prize in genetics for his groundbreaking contributions to the field of genomics. He now is devoted to finding a cure for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
 
email from #MEAction
A new book came out yesterday about world-renowned ME researcher, Ron Davis, PhD, called, "The Puzzler Solver: A Scientist's Desperate Quest to Cure the Illness that Stole his Son," written by journalist Tracie White.

#MEAction is hosting a discussion this Friday with authors Dr. Davis and Tracie White, along with Janet Dafoe, for a Facebook Live reading and discussion at 4 pm ET (1 p.m. PT and 9 p.m. GMT) to discuss the book, and the research journey that Dr. Davis embarked upon more than a decade ago when his now 37-year-old son, Whitney Dafoe, developed ME. Dafoe has had severe ME since 2004, which has left him unable to leave his darkened room, eat or drink on his own, or, at times, communicate.

Ron Davis, PhD, is a world-renowned geneticist who oversaw the creation of much of the technology that powered the Human Genome Project as director of the Stanford Genome Technology Center. Now, Davis spends every waking minute working to solve the mysteries of myalgic encephalomyelitis (ME).

Journalist Tracie White, who first wrote a viral and award-winning piece on Davis and his family in Stanford Medicine, tells the story of Dr. Davis' journey to cure ME
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FMMM1 said:
There was someone in the UK who published on ME affecting sight --- response times or some such.
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For me it’s visual blurring that even at the optometrist is very significant and I struggle to make things clear but it’s not correctable. I’ve been near-sided diagnosed and wearing glasses since 10 yo but since getting ME it’s something way different. Cannot focus my vision and during PEM/crash fuggetaboutit
 
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This is the video of the ME Action Book reading and Q&A from a few weeks ago hosted on Facebook. It is shorter and more focused on the book rather than including additional topics.
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https://www.facebook.com/1408335399448862/videos/3408715029258232
 
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Interview on Australian radio with Tracie White, by Suzanne Hill. It went out tonight across the country, on the ABC's Local Radio network:

ABC: Nightlife

Segment starts at 1:00:00 and goes to 1:26:40.
This recording will be up for only about a week.

Edit: This segment has now been put up separately and as a down-loadable file. Find it here:

The Writers: The Puzzle Solver by Tracie White
 
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Colin said:
Interview on Australian radio with Tracie White, by Suzanne Hill. It went out tonight across the country, on the ABC's Local Radio network:

ABC: Nightlife

Segment starts at 1:00:00 and goes to 1:26:40.
This recording will be up for only about a week.
Click to expand...
Is it geoblocked outside of Australia? I'm trying to play it, but it just keeps buffering. I'm not getting any error messages, though.
 
I have just finished reading the book. I found it very readable and think it will serve well to inform the general reader about the reality of very severe ME/CFS, and some of the history of the scandalous lack of research funding.

Hopefully it will be read by some clinicians and scientists too. The journalistic style with lots of descriptions of scenery and settings and personal lives of individuals, including the author and her family, was a bit overdone for my taste, but I recognise that I'm not the target audience.

The sections on the Lake Tahoe outbreak were interesting particularly for the shameful way the CDC dismissed it as hysteria, and the people who influenced the CDC and NIH to not fund research. I had read about all this before, but with some recent discussion here that seemed to suggest the psychologising of ME/CFS was a largely British phenomenon, this book made it clear that it has been just as bad in the US, with very sick patients being sent to psychiatrists, including the first surgeon Whitney's family asked to fit his Jtube for feeding who refused and told his parents he needed to see a psychiatrist. And that must have been within the last few years.

Edited to correct typo. I mis-spelled Whitney's name. Sincere apologies.
 
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