The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

Discussion in 'ME/CFS research news' started by ME/CFS Skeptic, May 23, 2019.

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  1. Andy

    Andy Committee Member

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    Thanks. I didn't go poking around in the tables so missed that. Labelled like that doesn't really give me confidence in whether or not those 8 people had ME/CFS or not.
     
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  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    If you had significant impaction on the spinal cord from CCI you would almost certainly have 'chronic fatigue' just from that. Spastic weakness in the legs is a tiring thing to have.

    There is also the problem of referral bias since the story linking EDS to fatigue has been around - at least since 2010.
     
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  3. Grigor

    Grigor Senior Member (Voting Rights)

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    A blog about the brainstem in relation to ME which also touches on CCI surgeries etc. I complained about it on Twitter that it didn't mention any of the negative outcomes of the surgeries. He was so kind to add it. Sorry to see he has a friend who didn't benefit from the surgeries either...

    https://synergies.substack.com/
     
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  4. Trish

    Trish Moderator Staff Member

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    Hmm. I started reading but gave up. It seems to be a hypothesis from a non scientist based on cobbling together anecdotes, blogs by other non scientists, and the odd bit of poor quality research and untested hypotheses.
     
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