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The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by rvallee, Nov 22, 2021.

  1. Woolie

    Woolie Senior Member

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    2,918
    I'm glad you say verifiable history, @hibiscuswahine. My guess is that if there really is such a thing as factitious disorder, then people with it would almost certainly be inclined to exaggerate their childhood hardships!

    I worry about some of the claims that are made about the causal role of childhood adversity in psychological presentations. Before I came to the world of ME, I didn't realise how tenuous these claims are. It seems that you can take any group with any mental health or medical complaint, and they will report more adverse childhood events than controls.

    There could be a number of spurious factors driving this association. One might be that those experiencing difficulties in the present see things more negatively, including their past. Another might be that they are searching more actively for explanations within their own life history (particularly if its a psychological or unexplained problem). Another contribution might be active suggestion, particularly if the person has undergone some form of psychotherapy, and been encouraged to scutinise their past. A whole lot of it is probably the old third variable problem: socioeconomic status. SES is a factor that that is likely to determine both childhood experiences and current health status.

    A huge portion of the problem is downright poor research - bad research practices and poorly defined constructs. A few papers I've read carefully use way too many childhood adversity variables, and they often double dip. You can get credit for both extremes of some variable - too much control vs. too little supervision, too demonstrative vs. too cold, too combative vs. too repressed. Then they dig out the one or two positive associations from this great fishing expedition and hide the rest.

    It seems like a tiny point, but I think a very important one. I think it really matters that mental health professionals don't over attribute things to people's childhoods, if it is not warranted. It can destroy whole families.

    end of rant.
     
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  2. Sean

    Sean Moderator Staff Member

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    Even if the childhood trauma claim is true, there is no solid evidence that any form of psycho-behavioural therapy can do much about it.

    I suspect that another fair chunk of the explanation for reported therapeutic 'successes' in clinical practice is simply that the patient realises they are not getting much more from it than a shoulder to cry on, and the easiest way to terminate the waste of time is to say they are healed now and thank you.
     
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  3. hibiscuswahine

    hibiscuswahine Senior Member (Voting Rights)

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    @Woolie @Sean. I totally agree there can be false attribution, it can be misused, abused etc. Yes, the literature can be flimsy. No, we can’t change childhood trauma but for some people, psychiatry has helped them. I am happy to say I have and many of my colleagues have. I do not feel the need to provide you with evidence of this.
     
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  4. Trish

    Trish Moderator Staff Member

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    I think we need to be careful about making such sweeping statements. I haven't read the literature on the treatment of people suffering from psychiatric conditions as a result of childhood trauma, but I have met people who suffered major childhood or adult trauma and have found therapy helpful.

    I think the problem a lot of us see with psychiatry is the misattribution of physical symptoms in conditions like ME to psychological factors such as catastrophising, or the effects of trauma, and misuse of psychotherapeutic techniques like CBT to try to 'fix' us.
     
    Last edited: Nov 29, 2021
  5. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    This is all very well, @Trish, but might it not be something completely different.

    I think you are talking about people who had known and undisputed trauma. It might be a child physically abused by an alcoholic parent or it might be a spouse grieving over a child who had committed suicide. I have no doubt such people are helped by seeing someone experienced who can help them patch up their lives. Nothing to do with psycho-behavioural therapy. Just sympathy.

    The different situation is where someone presents as ill, either with perhaps a depressive illness, maybe with some organic psychotic features, or with what is considered a psychosomatic problem. They are then interrogated to see IF they had childhood or recent trauma. They are then given psycho-behavioural therapy which consists of attributing their illness to this trauma.

    This second situation has two major flaws. One has been mentioned - it is very unclear how reliable the evidence is that on a statistical basis there is really an association between trauma and these problems. Reporting of trauma by someone seeing a psychotherapist for an unexplained illness is likely to be seriously biased. The other thing is that the patient having a sense of 'being helped' may be associated both with lifelong misery for others, who may have been wrongly implicated in the trauma, and with a dysfunctional existence for the patient themselves, having been induced into a delusory belief about how life works. And this happens, I can assure you.

    One other thing that I think is important to consider, and which I am going to spend some time on in my book, is that attributing illness to trauma in this second scenario is never justified.

    The reason it is never justified has to do with a very basic fact about knowledge. We know that A causes B because we have found A followed by B and also not A followed by not B. Without the counterexample there cannot be knowledge. There are subtleties but they do not change the basic structure of how we know. So it might be possible to prove a causal link between trauma and a type of illness in a population type where you first look at one population of this type and then look at another population of this type for which trauma has been eliminated. But you can never know there is a causal link in an individual because that individual will have a life history of A and B and will never have an alternative history of not A and not B. Knowledge is not available at that level.

    The only way we can be reasonably sure that A caused B in an individual is if in a population of similar individuals A is followed by B 95%+ of the time and not A is followed by not B 95% of the time. This works for a defective Factor VIII gene and haemophilia. It has no relevance to a vague statistical link between trauma and ill health.

    End of my rant.
     
    Last edited: Nov 29, 2021
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  6. Trish

    Trish Moderator Staff Member

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    I agree that it is often, and possibly always, unhelpful to dig back in the past of someone presenting with an illness with the aim of uncovering some past trauma, and specifically some other person, to blame for a person being ill, whether mentally or physically ill. I too am aware of family relationships being damaged by badly done therapy of this sort.

    You're right, I was talking about people who sought and found therapy helpful for coping with known trauma, past or present.

    I've just tried to apply that reasoning to the precipitating cause of ME/CFS. Many of us attribute this in ourselves to an infection, and we're seeing this happening to many developing long covid. But we can't say infections lead to ME/CFS 95% of the time, nor that 95% of ME/CFS is precipitated by infection. Even in the same person, infections for many years may be recovered from easily, only for one particular infection to set off ME/CFS.

    It might be the case that trauma sometimes causes illness and that some illness is caused by trauma. Perhaps, as with ME/CFS, we are looking at factors that contribute to illness alongside all sorts of other factors like genetic predisposition being more significant, and trauma being a contributory factor to psychiatric illness in some genetically susceptible people, and infection being a contributory factor to ME/CFS in genetically susceptible people. That would surely muck up a simple A causes B type of argument.
     
  7. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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  8. JohnTheJack

    JohnTheJack Moderator Staff Member

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    I think there may be some truth in this. We have spent all the time we have been ill facing doubt and questioning, so we have, understandably, circled the wagons. It is something of an article of faith among us (and actually a rule on this forum) not to question others' diagnosis.

    Several times though, including a few prominent people, I have in my own mind doubted they actually have ME. I tend not to express this opinion and at most will say something along the lines of: 'They don't seem to have the same illness as I do.'

    It's also true that some doctors have used it as a wastebasket diagnosis for 'problem patients'.

    It may be that the acquaintance actually believes we all are to a degree, but the fact is that ME is a 'perfect hiding place for someone pretending to be ill' as this woman appears to confess to having done in her diary.

    On another question being discussed, there is quite a lot out there on the notion that unevidenced childhood trauma is overused by some. It is, I understand, popular among the critical psychiatry crowd who think diagnosis and medication (and especially ECT) are bad and everyone with any kind of mental health illness should have psychotherapy.
     
  9. Mithriel

    Mithriel Senior Member (Voting Rights)

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    Typically, I have lost the reference to it, but I remember reading a questionnaire that was used to measure childhood trauma. Using a questionnaire rather than a discussion with the patient could be leading to all sorts of problems the same way anxiety and depression are over diagnosed by using them.

    It had different questions which each scored the same but were different in awfulness for instance. Then they tried to be all inclusive with sexual abuse but ended up giving the same score for someone who saw a flasher and someone who was repeatedly raped.

    A question asked if a parent was imprisoned without taking into account that an abusive father being locked away may have been the best thing that happened rather than a trauma. I could go on.

    It is very difficult to put a measure on childhood trauma as each child copes in a different way. Some people will use abuse as an excuse to avoid personal responsibility for anything that goes wrong in adulthood while others will refuse to be bowed down so they struggle too hard to succeed.

    The effect on illness is also difficult to measure. Most serious abuse of children has a physical component. A child who is continually slapped round the head is more likely to have neurological problems than psychological ones. The idea that trauma means psychological disease is simplistic, a ladybird book science we find too often in BPS work.
     
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  10. Ebb Tide

    Ebb Tide Senior Member (Voting Rights)

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    Helen Naylor was on Saturday Live BBC Radio 4 this morning. I didn't listen to it. I'd been listening to the Vicky McClure interview but switched off at the introduction as it sounded familiar from this thread as I didn't feel up to facing it over my porridge.

    https://www.bbc.co.uk/sounds/play/m0013qs5
     
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  11. ukxmrv

    ukxmrv Senior Member (Voting Rights)

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    Wouldn't be be strange for someone with a disorder to reveal the truth in their diaries?

    (p.s. I switched off Radio 4 when it felt as if they weren't asking the right questions but that could have changed over the interview)
     
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  12. Forbin

    Forbin Senior Member (Voting Rights)

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    A quick search seems to indicate that people with Munchausen's are aware that they are lying, but that they are also unable to keep themselves from doing so. Admitting, perhaps regretting, an antisocial compulsion in a diary seems pretty common in drama, at least. I not sure how often it happens in real life.
     
  13. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Is it possible that some people with a ‘contested’ illness come to the mistaken belief that they have some form of Munchausen’s when in fact they have a genuine illness?

    When doctors repeatedly tell someone they have a psychosomatic condition is it possible that an impressionable person comes to the conclusion that they themselves are lying or delusional? There are symptoms that are difficult to understand, for example severe pain in the absence of identified structural damage or disease, or the inability to walk across a room one day contrasted with the ability to walk a couple of miles the next, so when the person is repeatedly told their symptoms don’t exist, they come to believe that they would be lying if they reported these symptoms.

    An iatrogenic induced false Munchausen’s in the context of a real but unacknowledged biomedical condition.
     
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  14. Keela Too

    Keela Too Senior Member (Voting Rights)

    That would make sense @Peter Trewhitt .

    And if CBT really does alter folks beliefs about themselves and their situations etc then surely it is just as possible that some one could have intraogenic Munchausens!

    Surely therapists who deliver CBT should have considered (as part of the ethics of CBT delivery perhaps) what might happen if patients were persuaded by CBT to belief something false?
     
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