The Triumph of Eminence-Based Medicine - Brian Hughes

Cheshire

Cheshire

Senior Member (Voting Rights)
Blog by @Brian Hughes

A quarter of a million Britons have been diagnosed with myalgic encephalomyelitis (ME), the condition also known as chronic fatigue syndrome (CFS). ME/CFS is a severe debilitating illness that renders patients either temporarily or perennially immobile. Sufferers will have often led very active lives before being struck down. After onset, they are forced to give up work or education. Many patients become bedridden for decades. People with ME/CFS experience a full syndrome’s worth of symptoms, dominated by ‘crashes’ of extreme unrelievable tiredness (formally referred to as ‘post-exertional malaise’), along with muscle weakness, digestive problems, pain, and hypersensitivity to light or sound.
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https://notthesciencebit.net/2018/11/03/the-triumph-of-eminence-based-medicine/
 
Arnie Pye said:
Looking at the web address which includes "2018/11/03" I'd say, yes this is new. :)
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Thank you. Have also read it by now and as it includes a recap of the Guardian podcast I realised it was brand new.

This was a great blog post. I can't tell how uplifting it is to see non patients following the ME debate and being able to see through the establishment and in to what's actually going on.
 
We should not see ME/CFS as resulting from mass cognitive hysteria among a quarter of a million UK citizens. Rather, we could see the biopsychosocial theory of ME/CFS as a grand sanctimonious delusion shared by a professional clique who, for circumstantial reasons, find themselves dominant in British behavioural healthcare.
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Brilliant. Thank you @Brian Hughes for a concise and insightful summary of the way things are.
 
BruceInOz said:
Brilliant. Thank you @Brian Hughes for a concise and insightful summary of the way things are.
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That was my favourite bit too, @BruceInOz.

So much so I'm copying it here again. I'd like it framed and presented as a bad science award to all the BPS crowd!

We should not see ME/CFS as resulting from mass cognitive hysteria among a quarter of a million UK citizens. Rather, we could see the biopsychosocial theory of ME/CFS as a grand sanctimonious delusion shared by a professional clique who, for circumstantial reasons, find themselves dominant in British behavioural healthcare.
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Barry said:
Although there are obviously issues with NICE, not sure it is right to lump it into the same basket as PACE.
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That the current guidelines aren’t fit for purpose was caused by the original grand sanctimonious delusion. That NICE eventually accepted they aren’t fit for purpose is indicative that they have probably moved away from that delusion but the evidence that NICE aren’t still in the same basket as PACE will be shown by what is included/excluded from the new guidelines
 
Trish said:
That was my favourite bit too, @BruceInOz.

So much so I'm copying it here again. I'd like it framed and presented as a bad science award to all the BPS crowd!
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David Marks have made a similar point - I love how these psycologist/psychiatrics (?) can, and do, say things no patients advocate could allow themselfs :thumbup:

Perhaps Psychologists need to turn the Psychological Theory of unhelpful beliefs upon themselves.
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https://davidfmarks.com/2018/09/22/psychology-science-or-delusion/
 
Kalliope said:
Thank you. Have also read it by now and as it includes a recap of the Guardian podcast I realised it was brand new.

This was a great blog post. I can't tell how uplifting it is to see non patients following the ME debate and being able to see through the establishment and in to what's actually going on.
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Many thanks @Kalliope , I really find that very humbling :sun:
 
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