Tom Ingman (Research Student) - Chalders protege? bPS Nextgen

https://twitter.com/user/status/1175042465964969987

https://twitter.com/user/status/1175033599374036992

https://kclpure.kcl.ac.uk/portal/en/persons/tom-ingman(a757866b-0975-4c36-bf27-bdb480bd1e30).html
(can't find any more details on this)

see also:
https://www.ncbi.nlm.nih.gov/pubmed/26846611

eta: 2nd tweet seems to have been deleted (following retweet by DT)
here's a screen shot of the other one

 

oh christ. just when I thought the Chalder group's research couldn't get any more pathetic, they add a nice dose of identity politics.

 

until we have more people studying how we achieve recovery, rather than how we feel about recovery, progress will be at a snail's pace.

 

That is so patronising. When you think how many cherished roles pwME are forced to abandon. I bet nowhere is there recognition we are actually sick. Have patients from the community, beyond David tuller, actually had any success in engaging with Chalder , even if just presenting that their experience of illness is entirely different to how she presents from her outsider position?

 

Nobody we know of in the pace trial regained old roles and abilities. I would love that.

 

In a way it's sad that Chalder is misleading other gullible people into a career dead-end, but then again whoever is foolish enough to not see through blatant pseudoscience deserves to pigeonhole themselves into a short and useless waste of a career.

 

A recovery from long chronic illness would come with having to readjust to the new level of health and build up one's life again. Is that what is talked about here, or is it the usual fantasy about the power of psychology making a recovery happen?

 

It's noticable that he used the Oxford criteria for selection of patients. With the expansion of IAPT and the fact that it seems beloved by all political parties in the UK, I expect he thinks he will have a long and lucrative career, working on CBT (and GET) for 'medically unexplained symptoms'.

I anticipate that as more and more evidence mounts for the problems of post exertional malaise and a broken energy system in ME patients, the BPS crowd may begin to seperate 'ME with PEM' from CFS (Oxford criteria). I think we have already seen some papers where they seem to be laying the groundwork for this. Then they won't have to deal with those annoying ME patients who keep challenging and critiquing their work - but they will be left with a big pool of patients with 'medically unexplained fatigue' who they can continue to 'work with' in relative 'peace'.

 

This shows the BPS brigade's lie that researchers are being scared off for what it is, and demonstrates that they are successfully grooming a new generation of abusers.

 

He's probably hoping for an 'award for bravery to medical services in the face of patient hostility' type award in the future...

 

Being a psychobabbler certainly seems to be the easiest way to get a bravery award these days. They seem to be as good at devaluing the concept of bravery as they are at devaluing everything else.

 

how do you regain old roles or roles that where never achieved careers and raising families are time sensitive you cannot seriously think a person who has been chronically ill for decades can just have the life of a healthy person . have they invented age reversal or perhaps a society where life opportunities are not delineated by age .

 

It is actually perfectly clear - it doesn't bl**dy work. Full stop.

 

Not much point trying to find any sense or substance to this, there isn't. It's just meaningless neo-Freudian drivel and more of a creative writing exercise than anything to do with reality.

 

https://twitter.com/user/status/1176595735598383104

https://twitter.com/user/status/1176557122307248128

 

I will finally get my UK old age pension in November. At the weekend some friends put photos up on facebook from our schooldays. This gave me a bit of an emotional crisis as I have never answered the question "What will I be when I grow up?" Sicker than I was at 14 is the only real answer

I have had a good life in many ways, a painful struggle in others and my common sense tells me I would be glad to retire and bored with my work whatever it turned out to be, but just, maybe, I would have been a success!

I don't dwell on things, life is too precious, but just occasionally. If certain people had not got their grubby little hands on ME there might have been a treatment 30 years ago and many of us would have had a chance to do something.

Must mention my admiration for those people as sick or sicker than me who have managed to do so much good for us, a real success in the world by any standards.

 

Well, when I said something like this to a psychiatrist he told me my subconscious did not want to work

Things are much more hopeful now with a new generation investigating the biology of ME and advances in biochemistry and medical physics. I hope your son will benefit from that.