Trial By Error: BMJ Amends Last Week’s PACE Article

Discussion in 'General ME/CFS news' started by Eagles, Feb 12, 2019.

  1. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    And it still leaves me fuming, angry, pissed off, etc etc etc.

    It reads like an attack on all patient advocates rather than a clear report on the (bloody useless) report from the HRA.
     
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  2. Andy

    Andy Committee Member

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    So what's the URL for the new version?
     
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  3. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Same as the old one of course! But scihub only captures an archived version of the old one.
     
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  4. inox

    inox Senior Member (Voting Rights)

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    Actually thought it was open access, as I don't pay for it or have any special access. Or so I thougt. Turns out having a norwegian IP + once clicked 'yes, I'm a health care worker' (I'm not) on a page that translates to 'the health library' I'm getting access through them. Funded by 'the national institute of public health'.

    But enough bragging :p

    Other things might have changed, only compared the paras quoted.

    Edit: For those having trouble reading - scroll down to post underneath, changes only posted.




    Not about activists - but between para 10 and 11, a new sentence/para added:


    Edit: Added quote box.
     
    Last edited: Feb 13, 2019
  5. inox

    inox Senior Member (Voting Rights)

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    Only the changed bits, for easier reading. The new sentences bolded:


     
    Last edited: Feb 12, 2019
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  6. dreampop

    dreampop Senior Member (Voting Rights)

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    Wow, well that's digging in.
     
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  7. Lucibee

    Lucibee Senior Member (Voting Rights)

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    omg they are making it even worse by adding that sentence - that implies that the "activists" they are talking about are not those who have raised legitimate concerns about the trial's conduct.

    Ref 3 is the reference to a letter about @dave30th 's letter to The Lancet, which was previously cited at the end of the first sentence.

    Let's all wave at Dave in his balloon as he sails away from the activist quagmire! [that's a joke btw]
     
  8. inox

    inox Senior Member (Voting Rights)

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    Ah, didn't notice the reference - the first time I read it, and didn't realise the article had been editet, it just came of as a bit wierdly out of place sentence. See your point. Not sure if the article by by Torjesen - "Pressure grows on Lancet to review "flawed" PACE trial" - is open access, so adding the opening para:

    https://www.ncbi.nlm.nih.gov/pubmed/30135174

    Edit: spelling
     
  9. WillowJ

    WillowJ Senior Member (Voting Rights)

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    But of course, because any concerns about the trial's conduct could never be correct. It was a thing of beauty. The definitive trail that got where it was always meant to go. How could there be any real concerns?

    smh
     
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  10. Alvin

    Alvin Senior Member (Voting Rights)

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    Indeed. I suggest they prove they can cure cancer with CBT since that kind of statistical distortion could do it. Lets see how long their medical licenses stay valid :emoji_smiling_imp:
     
  11. Kalliope

    Kalliope Senior Member (Voting Rights)

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  12. Alvin

    Alvin Senior Member (Voting Rights)

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    Something i just thought of, have any of the Nobel laureates from OMF signed onto any of the PACE criticisms?
    If so thats worth also mentioning.
     
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  13. Forbin

    Forbin Senior Member (Voting Rights)

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    When it comes to patients, perhaps instead of "activists" they should have used the term "engaged patients," as this 2016 World Health Organization document would seem to suggest.


    Patient Engagement: Technical Series on Safer Primary Care
    https://apps.who.int/iris/bitstream/handle/10665/252269/9789241511629-eng.pdf
     
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  14. Alvin

    Alvin Senior Member (Voting Rights)

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    But that would suggest patients making scientific and statistically backed up arguments should be treated as legitimate.
     
  15. aza

    aza Established Member (Voting Rights)

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