Trial By Error: Kaiser Permanente Changes Course

This

 

@dave30th quoting the doctor in the article:

So there is this group of patients that we now understand has an objective illness that is not psychiatric—whether it’s metabolic, neurological, or whatever. And what fascinates me is that this condition has been so mismanaged throughout medicine. What’s the sociology behind this? How did we remain ignorant for so long? We have made well-meaning recommendations that were harmful. I can say that—that’s the truth. There is no evidence that this is a primary psychiatric illness, and it’s not related to deconditioning at all. And so the treatments we have been advising aren’t the appropriate treatments.​

Very impressive to see someone in a senior position in an organisation making an admission like that, and putting patients first.

Great job, @Webdog and @dave30th

 

Thank you @Webdog for proving that even if we're very ill, if we just stick with it (and stick with it, and stick with it) we can effect real change. This is enormously motivating for all of us who are chipping away at our own mountains of misinformation. 3x3 hooray!

 

"When I first started this, I looked mainly at the information from Britain. And I thought, ‘Wow, they’re really being thoughtful and trying to figure out what the right thing is to do, and we need to get people this evidence-based care.’ That’s how GET and CBT were presented."

 

Not familiar with Kayser permanente, but understands that it is a major player over there, and great news. Well done! Hope it will inspire a whole lot of players over here.

 

Great. Well done @Webdog !

 

Let's hope other health insurers pay attention to this, and that at least the financial incentive the PACE appologists have from advising the insurance industry is removed.

 

Other insurers have no real reason to pay attention, we will have to make them or hope for luck and very few might or wait for a mainstream treatment before they will take notice.

 

Living in UK, trying to get my head round who & what are Kaiser Permannete, so looked on Wikipedia

https://en.wikipedia.org/wiki/Kaiser_Permanente

 

Thank you so very much, @Webdog! You have truly inspired, and have paved the way for care for many with ME.

Thank you @dave30th for your excellent coverage of this, and as always.

This change adds light and hope!

I hope it spreads. We can if able, pass along news of this to others: individuals, and institutions.

Thank you so much again @Webdog! And, I hope this work has not taken a toll on your health. Take care.

 

Thanks you so much @Webdog, a true "dog with a bone"!

 

Am I right in thinking @Webdog , webdog6 and Jeff Schwartz are all one and the same person?

 

I think we can safely say that various members of the BPS brigade are having a bad day. Will they try to brazen it out? How long for, do you think?

 

That is correct.

 

I am truly delighted - and grateful- by the Kaiser anouncement, but the knowledge about true ME is not new, it has been there, at least, since I got ill in early 1980s. That cannot be forgotten.

 

"What's the sociology behind this?"

Well...............

 

This is the section that jumped out at me also. It is why the BPS people, with their short-sighted science, have never been able (nor wanted) to see beyond the cohort of patients who fit their own expectations.

 

Dr. Olson is very aware I became ill following a viral infection more than 40 years ago.

My focus is on trying to improve ME/CFS diagnosis, care and support to reduce patient suffering right now.

But like you, I don't want the history of this illness forgotten either.