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UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

Discussion in 'News from organisations' started by Andy, Feb 19, 2020.

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Page 14 of 14
  1. Alis

    Alis Senior Member (Voting Rights)

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    149
    Thanks hotblack. I may try that.
     
    Alis, Sep 19, 2024
    #261
    MEMarge, hotblack, alktipping and 3 others like this.
  2. JohnTheJack

    JohnTheJack Moderator Staff Member

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    4,735
    Ah right. There was just the one, but it was personal, in the sense that I mentioned when we last saw each other and how I'm affected, so it wouldn't be of any use.
     
    JohnTheJack, Sep 19, 2024
    #262
    MEMarge, hotblack, Hutan and 6 others like this.
  3. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,501
    Location:
    Canada
    That sounds like a lot of CBT. And very expensive. And not very effective.

    How does that even work? What I know of CBT is that it's very repetitive and loopy, you can pretty much cover it in 10 minutes.

    Sounds like either someone made a lot of money, or the health care system wasted a lot.

    But for sure you can definitely claim that CBT is very effective at getting health care systems to convince sick people they are to blame for their own failings. That I definitely recognize.
     
    rvallee, Sep 20, 2024
    #263
    bobbler, MeSci, EzzieD and 5 others like this.
  4. hotblack

    hotblack Senior Member (Voting Rights)

    Messages:
    271
    Location:
    UK
    In my experience CBT is very good for some things. But is also sometimes used as a term for therapy which isn’t actually CBT. And also used completely inappropriately for things it shouldn’t be…

    In that way it reminds me a bit of the terms and practices of Scrum or Agile in the tech world. I guess all fields have buzz words and trends that people pick up on and misunderstand.
     
    hotblack, Sep 21, 2024
    #264
    Hutan, Peter Trewhitt and Trish like this.
  5. Trish

    Trish Moderator Staff Member

    Messages:
    55,024
    Location:
    UK
    MEA article:
    Update on a new All-Party Parliamentary Group (APPG) on ME
    October 2, 2024
    https://meassociation.org.uk/2024/10/update-on-a-new-all-party-parliamentary-group-appg-on-me/

    Action for ME and the ME Association are keen to continue providing joint secretariat for a new All-Party Parliamentary Group (APPG) on ME.

    Since the election, we have been engaging with new and continuing MPs to raise understanding of ME; this has included increasing the number of Parliamentary Champions as reported by Action for ME yesterday

    We are now in the process of contacting parliamentarians to secure commitment from parliamentarians to take on one of the four officer roles needed to establish the APPG and the minimum requirement of 20 members. Once we are confident that these can be secured, a date will be identified for an Inaugural Meeting. Assuming appointments of the officers and membership requirements are met, the APPG can then be formally registered.

    Action for ME and the ME Association will work together, including through engagement with ForwardME, to ensure the APPG carries the greatest impact it can for people affected by ME. We are also keen to work with the APPG on a new communications strategy. We will share further updates as soon as we have them.

    We are aware that many of you may already have met with, or had conversations with your local MP, and if so, would very much welcome you to contact them to invite them to join the APPG or enquire whether they would take on an officer role.

    Please direct any MPs, or send any information to policy@actionforme.org.uk

    Thank you for your support!
     
    Trish, Oct 3, 2024
    #265
    Kalliope, MeSci, Sean and 5 others like this.
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