Closed UK: DecodeME updates, was recruitment thread.

Discussion in 'Recruitment into current ME/CFS research studies' started by Andy, Sep 12, 2022.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    I was delighted to be reminded what a huge percentage of people had signed up to have their de-identified data shared and to be contacted for further research. Big win!

    Can't wait to see the results...
     
    hotblack, EzzieD, MeSci and 11 others like this.
  2. Ravn

    Ravn Senior Member (Voting Rights)

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    Aotearoa New Zealand
    Thanks for the update @Andy

    I have a dim memory of Chris saying somewhere, can't recall where not so long ago, that there were disappointingly few external parties applying to access the DecodeME data for their own studies. Has interest picked up? If not, what can we do in the new year to help things along?

    Other than that sounds like you're making good progress :party::thumbsup:
     
    hotblack, Binkie4, Kitty and 9 others like this.
  3. Andy

    Andy Committee Member

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    No, interest hasn't yet picked up, although we suspect that it will once we publish the genetic results.

    Pointing out that the data is available to researchers that you might be in touch with? Or if you do social media then sharing the information there might just attract attention.
     
    Ravn, obeat, hotblack and 12 others like this.

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