A word of advice from someone who knows a lot about politics: don't use their language. The plan doesn't aim to boost or improve anything. Never privilege a lie, always call them out when you are dealing with this kind of systematic obfuscation and dishonorable lying.
And do not give credit for intent. The people responsible for this are not ten year-olds, there is no need to encourage them for their intentions, those don't matter one bit. It's outcomes that matter, and only outcomes. This won't change outcomes, and it's a total Dr Magoo bullshit that ignores the entire context and history, how it has been playing out exactly the same way for decades. There have been many reports and studies in the last few decades that make it clear this is a complete disaster, and they are doing nothing to improve on it. In fact this is a complete whitewash.
This. It’s painful to watch the politeness and by the threatening silencing anyone who advocates for me/cfs had to speak under dud to his unpleasant the people who run the sector are turning into politeness you end up with interviews where we look mad because the straightforward answer can’t just be said
These coercive abusers have turned it into a situation where the victims themselves go into interviews and muddy the waters because of how threatening their behaviour is even when they are offering zilch.
The whole interview needed to say just how ill x thousand are (no one knows because of the kid selling of what it is). And then that even they are not just getting no care and in fact abuse for their illness, but unlike anyone else with anything they are targeted in hospitals and all other services due to historic and current edicts. So that unlikely man off street getting medical care if the get hurt or something else the colleges suggest if you have this label you are waltzed out even with that.
And no one has started off by removing the people who have pretty blatantly showed their hand on this from being able to influence whether patients live or die etc.
So imagine why, with this sinister power issue being left, we have no services at all.
And yes I think we need to do better on gonna and start thinking how we compare to norms for other illnesses of similar level of debilitation and need and each and every moment of truth. So that we can do a good job of getting across how deliberate and counter productive much of it is
As long as we keep letting that narrative of nothing cos it’s fatigue being left even when we get as much tv time as this did and don’t say it how it is everyone is going to be left puzzled thinking ‘myseltery’ just like you know who wants it.
We are going to have to be brave enough to just tell it how it is in frank terms and weather these people’s tantrums. Because they don’t behave any more mercifully even if we are polite btw.