[UK] Guardian: 'A cruel penalty’: disabled people face lower benefit payments if conditions not deemed lifelong - mentions ME

I got my NHS pension in 2001, based on a private neurologist’s report explicitly saying my ME was lifelong, having then been diagnosed for some six years. This was strongly supported by my employing trust, which was keen for me to go, given I had been on sick leave for a year by then.

Before me most people had been turned down by the NHS pension scheme because the condition was not seen as permanent, but I was lucky in my timing in that in 1999 (I think) the NHS had issued an internal document recommending employing trusts recognise CFS as a significant disabling biomedical condition. However I since heard of others being turned down because the condition was again not regarded as permanent. I don’t know if the NHS still recognises our condition as disabling and biomedical in relation to its own employees?

My health is worse now than it was when I was forced to stop work twenty five years ago.
 
I think with the Ill Health retirement it’s linked more to insurance, it’s more similar to “would a private insurer pay out in these circumstances” rather than your employer/the state/the NHS recognise you’re ill.

Many people were working for the public sector so it can seem a bit unusual that a government employer and scheme is running on more privatised capitalist lines.

That being the case, I’m sure you can all see the issue of privatised health-insurance type influences about ME/CFS, or should I say the elephant in the room? Bull in a china shop? Sharpe and Wessley influences strikes again.
 
The PACE paper by McClone et al was quoted in my medical report for ill health retirement application as nobody returned to their previous employment following the trial.
In a sane world, this would always work. In a sane world, those results would have ended this farce. The fact that it did strongly suggests our world isn't just not sane, but positively insane.
 
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