UK Invest in ME conference 2025

[Sasha]

No, they threw me out, more or less.

Argh, madness!

Do you think we need an ME/CFS conference, either UK-based or international? Even a private Zoom version where researchers can open up? That doesn't have weird exclusions of people?

 

[wigglethemouse]

It makes me sad that the most popular annual ME/CFS conference blacklists quite a few researchers.

And also they refused to listen to suggestions for improvement of their microbiome re-population (poo) trial.

 

[SNT Gatchaman]

The colloquium is underway now (Wed/Thu) and the conference on Friday. Hopefully the majority of conference talks will become available in due course. The YouTube channel is here.

 

[Sly Saint]

​

IIMEC17 Presentations​

Here are the videos of all of the presentations at #IIMEC17, in the sequence of being given. Click on the images to display the video and presenter details.:
(17 videos)

Invest in ME Research - 17th Biomedical Research into ME Conference 2025 #IIMEC17

17th Invest in ME Research Biomedical Research into ME Conference 2025

www.investinme.org

includes

Simon Carding,​

Quadram Institute, UK​

Opening and #BRMEC14 Days 1-2
Summary

Ron Davis,​

Stanford School of Medicine, USA​

Diagnostic Breakthroughs and
Therapeutic Horizons for ME

Etianne Martini Sasso,​

NCNED, Australia​

Neurological/Immunological mechanisms underlying ME: an innovative & multidisciplinary investigation

Jos Bosch, University of​

Amsterdam, Netherlands​

Netherlands: A Foundational Strategy
of Research

 

[InitialConditions]

Some of these videos have <5 views. Why upload them to YouTube unlisted?

 

[wigglethemouse]

Dr Systrom talk starting at 11:41 is very interesting. Preliminary partial data showing reduced mitochondrial biomass in muscle and / or reduced electron transport chain in some with ME/CFS. This is related to the reduced oxygen uptake see on the CPET test in a subset. Preliminary data, study still in progress.



Video is only showing 3 views! Come on guys, this is interesting.

 

[Utsikt]

Dr Systrom talk starting at 11:41 is very interesting. Preliminary partial data showing reduced mitochondrial biomass in muscle and / or reduced electron transport chain in some with ME/CFS. This is related to the reduced oxygen uptake see on the CPET test in a subset. Preliminary data, study still in progress.



Video is only showing 3 views! Come on guys, this is interesting.

Compared to activity-controlled healthy subjects?

 

[wigglethemouse]

Compared to activity-controlled healthy subjects?

Disease controls, fatigue, no PEM, patients from clinic with heart disease, PAH etc who also have CPET data and are fatigued.

 

[SNT Gatchaman]

Come on guys, this is interesting.

Systrom —

Mitochondrial biomass is down in all. (This is opposite to genetic primary mitochondrial myopathies where biomass increases to compensate.) Then you have two subsets: high systemic O2 extractors and low systemic O2 extractors (at peak exercise). Predicated on unimpaired or impaired electron transport chain. Do not know why or if the unimpaired also represents some degree of compensatory response.



This is from preliminary baseline data. The post exercise challenge data should show more.

 

[Turtle]

In an interview Systrom showed a video of a participant step on step of as challange. Causing a "little PEM" he says.
It would certainly get me to PEM. I could not do that in the same tempo. That's why I am a Turtle.