UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

[Binkie4]

22
days to go
£8,103
donated of £15,000 stretch target from 222 pledges

 

[Sasha]

I shall be off the forum to rest completely for a while to recover from PEM. Hospital appointment at end of week. So I'll be unable to keep eye on campaign. ( edited)

Thanks for the updates, Binkie4 - rest well, and good luck with your hospital appointment.

 

[Binkie4]

Thanks for the updates, Binkie4 - rest well, and good luck with your hospital appointment.

Thanks @Sasha. Despite resting all week, I didn't manage the non local appointment but was able to postpone. More resting.

 

[Binkie4]

Update 2
#JusticeforME

https://www.crowdjustice.com/case/justice4me/

£8398 raised


Sept. 8, 2025

Keep on sharing, please keep on giving​

We are over halfway to our stretch target, thank you for these donations!!

Our next update will be on case(s) progress. Meanwhile, a couple of details on the campaign.

Thanks to everyone who let us know they were confused by the title on the #Justice4ME home page when it launched. The campaign is for a specialist NHS service for everyone living with ME, including family carers, regardless of the severity or duration of the illness. We think this includes NHS employees working with everyone living with ME too - but until they join us that's just a guess.

We have changed the title to reflect this distinction but please come back to us with more feedback if you think we can improve on it.

Also, people have reported having had difficulties with sharing the fundraising page. We have tested this with both a computer and a smartphone but could not find the issue. CrowdJustice will be pleased to help if the problem persisits. Please contact them direct at support@crowdjustice.com. If you can screenshot the issue it may help describe it to them better.

Everyone living with ME knows the only way to survive it is to pace. Everything. All the time. Day in, day out. Year in, year out. August was an over-excited month for us in the UK, with the Final Delivery Plan being published by government late in July and the Decode ME findings being published a couple of weeks later. Add to the emotion of these historic moments a very long hot summer and you can guarantee ME symptoms will increase. We are thinking of you all; we are here for you all, and for nobody else.

With #Justice4ME there is no rush to keep up; we know our case(s) need time. Some of our contributors are not well enough to complete what they have started. That is OK. We will be here when they have enough energy spare to come back.

Without you too, we are nothing. Just join us when you can, give as much as you can afford, and share our campaign with everyone you know.

Justice4me.uk will take you directly to the giving page.

 

[Sly Saint]

why didn't they use the #Justice4ME hashtag?

Post in thread 'Donation to Tuller/research as respond to our critics'

Apr 10, 2018

#IStandWithPWME

possibly a bit of an oxymoron?

I know this might sound a bit cliche but I've gone round and round and looked at various thesaurus options so my suggestion is #Justice4ME

definition:
just behaviour or treatment.
"a concern for justice, peace, and genuine respect for people"
synonyms: fairness, justness, fair play, equity, lack of bias, objectivity

the quality of being fair and reasonable.

of course I would also like to see the other form of justice but this would be good for starters.

• Sly Saint

• 

 

[Binkie4]

NHS care for ME now​

by #JusticeforME

Legal campaign
Lawyers: Rook Irwin Sweeney LLP
United Kingdom
#JusticeforME
Case Owner
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

£8614 raised