UK: Labour Party are asking "What would you like to ask Theresa May?"

Andy

Andy

Retired committee member
Note: This isn't intended as a partisan post, vote for who you want, I just see potential for ME advocacy in it.
Send us your questions for Theresa May, and Jeremy Corbyn could be asking her your question at Prime Minister’s Questions. Fill out the form and Jeremy Corbyn will ask the best question to Theresa May. Make sure to include your own personal story if you have one.
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https://donation.labour.org.uk/page/s/question-for-theresa-may

Thought this is an opportunity to potentially highlight the number of people affected by ME in the UK, especially to the Labour Party. Chances are he won't ask any ME question of May, but if the same thing crops up time after time, perhaps Labour will take notice and consider picking the issue up themselves.

The form asks for:
First Name, Email, and Post Code
and then
Tell us your question for Theresa May:
and then asks if you
Want to share your experiences with Jeremy? Please do so below:

There doesn't seem to be any need to be a Labour Party member, and you can opt out of being put on their mailing lists.
 
Jeremy Corbyn was supposed to be giving a speech at this year's IiME conference (is he still doing that, @Jo Best? I don't see him on the current conference agenda).

Whether he's still doing that or not, it shows he was interested enough to make the booking, so there's a good chance that our message to him won't fall on deaf ears. I agree this is an opportunity.
 
Perhaps pointing out that there is no controversy around ME. There is only contrived controversy from those who are heavily invested in not subscribing to reality.

I get the feeling that ME (not exclusively but especially) in the UK is seen as controversial. And therefore no one is willing to put in the time to unravel what is going on enough to make clear statements one way or another. This artificial narrative of 'controversy' is another way of stopping people who are not up to speed (ie those outside the immediate ME community) from aligning with the truth and reality of what ME is. Really.
 
Well, this is my attempt at it.
Why is that the government, despite being able to commit a reported £20m for research into brain cancer, a condition that affects a reported 11,000 people per year, completely denies that it has any ability to direct what should or shouldn't be funded when it comes to ME/CFS (otherwise known as ME, CFS, CFS/ME, Chronic Fatigue Syndrome, or Myalgic Encephalomyelitis), a condition that affects an estimated 250,000 people and leaves approximately 25% of those affected either bed- or home-bound?

The economic burden of these quarter of a million mothers, fathers, sons, and daughters, has been estimated to be at least £3.3 billion per year - and this obviously doesn't even begin to describe the emotional cost to those people affected.

Yes, the Department of Health will trot out the line that they have "invested" £3.35 million pounds over the last 6 years - the patients response is that the vast majority of that has gone into now discredited behavioural and exercise therapy studies, and only amounts to £2.23 per patient per year anyway - a pittance when compared to the cost to the country.
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Feel free to copy and/or adapt as you might want.
 
In 1940, when the lives of hundreds of thousands of British subjects were imperiled and their backs were to the sea, a Tory-led government inspired the world by unleashing a flotilla to save them. Prime Minister May, you could seize on that tradition and act boldly and come to your people's rescue or continue to do nothing. Just know for many of us the tide is coming in.

What would Winston do?

Bill
 
Bill said:
In 1940, when the lives of hundreds of thousands of British subjects were imperiled and their backs were to the sea, a Tory-led government inspired the world by unleashing a flotilla to save them. Prime Minister May, you could seize on that tradition and act boldly and come to your people's rescue or continue to do nothing. Just know for many of us the tide is coming in.

What would Winston do?

Bill
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I suspect that this is not the sort of question Corbyn would put to May. It would be very funny if he did though!
 
Esther12 said:
I suspect that this is not the sort of question Corbyn would put to May. It would be very funny if he did though!
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LOL. I strongly suspect that you're correct. But it what I'd ask (with perhaps a little work on the phraseology) given the chance.

Bill

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We shall fight on the beaches,
We shall fight on the landing grounds,
We shall fight in the fields and in the streets,
We shall fight in the hills; we shall never surrender
 
Snowdrop said:
Perhaps pointing out that there is no controversy around ME. There is only contrived controversy from those who are heavily invested in not subscribing to reality.
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This needs to be put in any question because the default answer is to ask a PACE pusher for their "expert" opinion then end the conversation
 
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